如果你想了解丛集性头痛的真正含义,想象一下……通过欧洲病人自己的经历来培养同理心。

Q2 Medicine Functional neurology Pub Date : 2018-01-01 DOI:10.11138/fneur/2018.33.1.057
Paolo Rossi, P Little, E R De La Torre, A Palmaro
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引用次数: 4

摘要

丛集性头痛(CH)可以说是折磨人类的最严重的疼痛状况。这种疼痛的严重程度为它赢得了“自杀头痛”的绰号。了解CH对患者的影响是至关重要的,因为这种理解会产生同理心,这对这些患者来说是非常宝贵的。在2017年集束性头痛日之际,我们邀请了来自欧洲不同国家的CH患者分享他们的经历,以帮助人们想象患有这种疾病意味着什么。在这里,我们来看看他们故事中的一些节选。这些CH患者的直接描述提供了该疾病的临床特征和后果的重要说明,有助于将其及其心理和社会后果置于背景下。CH患者第一人称叙述的报告可能有助于强调医生在这种疾病的心理和社会后果方面的作用和责任。
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If you want to understand what it really means to live with cluster headache, imagine... fostering empathy through European patients' own stories of their experiences.

Cluster headache (CH) is arguably the most severe pain condition that afflicts humans. The severity of the pain has earned it the nickname "suicide headache". Understanding how CH impacts on those who suffer from it is essential, because this understanding creates empathy, which is so valuable to these patients. On the occasion of Cluster Headache Day 2017, we asked CH patients from different European countries to share their experiences, in order to help people to imagine what it means to live with the condition. Here, we look at some extracts from their stories. These CH patients' direct accounts provide an important illustration of the clinical features and consequences of the disease, helping to contextualise it and its psychological and social consequences. Reports of CH patients' first-person accounts might help to underline the physicians' role and responsibility with regard to the psychological and social consequences of this disease.

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来源期刊
Functional neurology
Functional neurology 医学-神经科学
CiteScore
3.90
自引率
0.00%
发文量
0
审稿时长
>12 weeks
期刊介绍: Information not localized
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