研究志愿者对慢性疲劳综合征和肌痛性脑脊髓炎的态度。

Neurology (E-Cronicon) Pub Date : 2017-01-01 Epub Date: 2017-08-16
Pamela I Nehrke, Pamela A Fox, Leonard A Jason
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摘要

肌痛性脑脊髓炎(Myalgic Encephalomyelitis, ME)和慢性疲劳综合征(Chronic Fatigue Syndrome, CFS)是一种耻辱性疾病,其特征是认知困难、运动后不适、睡眠不清和其他症状。患者往往丧失行为能力,并被认为患有心理障碍。慢性疲劳态度测试(CAT)评估了对慢性疲劳综合症患者的污名化看法,然而,很少有研究检查可能导致对该群体污名化态度变化的因素。我们检查了大学年龄研究志愿者(N = 90)的CAT得分,假设与志愿者参与ME和CFS相关的研究项目相比,志愿者参与ME和CFS相关的研究项目而接触到有关ME和CFS的信息会减少对ME和CFS的污名化态度。研究结果表明,ME和CFS研究志愿者表现出较少的污名化态度。旨在传播有关ME和CFS的准确信息的教育工作可能会减轻ME和CFS患者的耻辱感和耻辱感。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Research Volunteers' Attitudes Toward Chronic Fatigue Syndrome and Myalgic Encephalomyelitis.

Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) are stigmatizing illnesses characterized by cognitive difficulties, post-exertional malaise, unrefreshing sleep, and other symptoms. Patients are often incapacitated and stigmatized as having a psychological disorder. The Chronic Fatigue Attitudes Test (CAT) assesses stigmatizing views toward individuals with Chronic Fatigue Syndrome, however, there is little research examining factors that may account for variation in stigmatizing attitudes toward this group. We examined CAT scores among college age research volunteers (N = 90), hypothesizing that exposure to information about ME and CFS as a result of volunteering on a ME and CFS-related research project would be associated with less stigmatizing attitudes compared to volunteers on unrelated projects. Findings indicated that ME and CFS research volunteers expressed less stigmatizing attitudes. Educational efforts aiming to disseminate accurate information about ME and CFS may mitigate stigma and the experience of stigma among individuals with ME and CFS.

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