{"title":"幸存者和病人的倡导者:对T.J.夏普的采访。","authors":"Thomas J Sharpe","doi":"10.2217/mmt-2017-0012","DOIUrl":null,"url":null,"abstract":"<p><p><b>T.J. Sharpe speaks to Sebastian Dennis-Beron, Commissioning Editor:</b> T.J. Sharpe is a stage IV melanoma patient who shares his journey through cancer in the Patient #1 Blog [1]. He was diagnosed in August 2012 with melanoma tumors in multiple organs; since then, he has undergone six surgeries and four immunotherapy treatments over two different clinical trials. The initial failures and subsequent significantly positive response have been chronicled in his blog posts since January 2013. His story is about life with a serious illness, and the mental and emotional hurdles a patient must clear. He writes how a cancer patient's challenges mirror those many face, and portrays life through the optimistic prism of a patient who is on the long, winding road toward overcoming melanoma's long odds and deadly consequences. He also shares the latest melanoma and oncology research breakthroughs and advocacy events, and initiatives to help others avoid, detect or educate themselves on cancer. As part of his advocacy, he attends cancer and melanoma conferences, reporting on the latest medical breakthroughs through his blog to other cancer patients. He also partners with advocacy organizations, clinical trial groups and the pharmaceutical industry to bring awareness to cancer research and developments. His efforts have been recognized by several organizations, including the Melanoma Research Foundation, Melanoma International Foundation, Patient Power, Forbes, Merck, GlaxoSmithKline, the Drug Information Association and the Milken Institute's FasterCures. In December 2014, he was able to share his story on Capitol Hill in a special session promoting immunotherapy research to lawmakers. A South Jersey native, T.J. lives in Fort Lauderdale with his wife Jennifer and two young children, Josie and Tommy. 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引用次数: 0
摘要
T.J.夏普采访了委托编辑塞巴斯蒂安·丹尼斯-伯龙:T.J.夏普是一名IV期黑色素瘤患者,他在患者1号博客上分享了他的癌症之旅[1]。2012年8月,他被诊断出患有多器官黑色素瘤;从那以后,他在两次不同的临床试验中接受了六次手术和四次免疫治疗。从2013年1月开始,他就在博客上记录了最初的失败和随后的积极回应。他的故事是关于患有严重疾病的生活,以及病人必须清除的精神和情感障碍。他写了一个癌症患者的挑战如何反映了许多人面临的挑战,并通过一个在漫长而曲折的道路上战胜黑色素瘤的病人的乐观的棱镜描绘了生活。他还分享了最新的黑色素瘤和肿瘤学研究突破和倡导活动,以及帮助他人避免、检测或自我教育癌症的举措。作为他倡导的一部分,他参加癌症和黑色素瘤会议,通过他的博客向其他癌症患者报告最新的医学突破。他还与倡导组织、临床试验团体和制药行业合作,提高人们对癌症研究和发展的认识。他的努力得到了几个组织的认可,包括黑色素瘤研究基金会、黑色素瘤国际基金会、患者力量、福布斯、默克、葛兰素史克、药物信息协会和米尔肯研究所的FasterCures。2014年12月,他在国会向议员们宣传免疫疗法研究的特别会议上分享了自己的故事。T.J.是南泽西人,他和妻子詹妮弗以及两个年幼的孩子乔西和汤米住在劳德代尔堡。他积极参与健康和保健活动,包括黑色素瘤/癌症宣传跑步和自行车骑行,也是一名狂热的瑜伽参与者。他也是A Prom to Remember(501)的董事会成员
Survivor and patient advocate: an interview with T.J. Sharpe.
T.J. Sharpe speaks to Sebastian Dennis-Beron, Commissioning Editor: T.J. Sharpe is a stage IV melanoma patient who shares his journey through cancer in the Patient #1 Blog [1]. He was diagnosed in August 2012 with melanoma tumors in multiple organs; since then, he has undergone six surgeries and four immunotherapy treatments over two different clinical trials. The initial failures and subsequent significantly positive response have been chronicled in his blog posts since January 2013. His story is about life with a serious illness, and the mental and emotional hurdles a patient must clear. He writes how a cancer patient's challenges mirror those many face, and portrays life through the optimistic prism of a patient who is on the long, winding road toward overcoming melanoma's long odds and deadly consequences. He also shares the latest melanoma and oncology research breakthroughs and advocacy events, and initiatives to help others avoid, detect or educate themselves on cancer. As part of his advocacy, he attends cancer and melanoma conferences, reporting on the latest medical breakthroughs through his blog to other cancer patients. He also partners with advocacy organizations, clinical trial groups and the pharmaceutical industry to bring awareness to cancer research and developments. His efforts have been recognized by several organizations, including the Melanoma Research Foundation, Melanoma International Foundation, Patient Power, Forbes, Merck, GlaxoSmithKline, the Drug Information Association and the Milken Institute's FasterCures. In December 2014, he was able to share his story on Capitol Hill in a special session promoting immunotherapy research to lawmakers. A South Jersey native, T.J. lives in Fort Lauderdale with his wife Jennifer and two young children, Josie and Tommy. He is active in health and wellness initiatives, including melanoma/cancer awareness runs and bike rides, and an avid yoga participant. He also serves on the Board of Directors of A Prom to Remember, a 501
期刊介绍:
Skin cancer is on the rise. According to the World Health Organization, 132,000 melanoma skin cancers occur globally each year. While early-stage melanoma is usually relatively easy to treat, once disease spreads prognosis worsens considerably. Therefore, research into combating advanced-stage melanoma is a high priority. New and emerging therapies, such as monoclonal antibodies, B-RAF and KIT inhibitors, antiangiogenic agents and novel chemotherapy approaches hold promise for prolonging survival, but the search for a cure is ongoing. Melanoma Management publishes high-quality peer-reviewed articles on all aspects of melanoma, from prevention to diagnosis and from treatment of early-stage disease to late-stage melanoma and metastasis. The journal presents the latest research findings in melanoma research and treatment, together with authoritative reviews, cutting-edge editorials and perspectives that highlight hot topics and controversy in the field. Independent drug evaluations assess newly approved medications and their role in clinical practice. Key topics covered include: Risk factors, prevention and sun safety education Diagnosis, staging and grading Surgical excision of melanoma lesions Sentinel lymph node biopsy Biological therapies, including immunotherapy and vaccination Novel chemotherapy options Treatment of metastasis Prevention of recurrence Patient care and quality of life.