支持癌症儿童的决策:一项综合研究。

IF 1.9 3区 医学 Q2 NURSING Journal of Pediatric Oncology Nursing Pub Date : 2020-11-01 Epub Date: 2020-05-27 DOI:10.1177/1043454220919711
Noyuri Yamaji, Maiko Suto, Yo Takemoto, Daichi Suzuki, Katharina da Silva Lopes, Erika Ota
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引用次数: 9

摘要

背景:最近,意识到儿童的决策已经增加,努力加强姑息治疗。然而,癌症儿童决策的概念框架仍不清楚。目的:我们明确了癌症儿童在家庭和卫生保健专业人员的护理、治疗和支持方面的决策过程,并确定了他们的需求和偏好。设计:我们采用人种学方法对相关研究进行综合分析。数据来源:检索PubMed, EMBASE, PsycINFO, MEDLINE和CINAHL。本报告是根据PRISMA的声明编写的。结果:在检索到的7,237项研究中,有27项符合我们的纳入标准。出现了四个主题,反映了癌症儿童的决策过程:(a)面对健康威胁带来的变化,(b)准备采取行动,(c)坚持自己的选择,以及(d)内部和外部影响。结论:儿童癌症患者最初经历一个决策过程。尊重孩子的偏好、价值观和情感可能有助于建立信任关系,提高他们的决策能力。未来的研究应关注儿童的情绪、认知、发展以及与父母和卫生保健专业人员的互动。
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Supporting the Decision Making of Children With Cancer: A Meta-synthesis.

Background: Recently, awareness of children's decision making has increased in an effort to enhance palliative care. However, the conceptual framework for decision making among children with cancer remains unclear. Aims: We clarified the decision-making process of children with cancer regarding their care, treatment, and support from family and health care professionals, and identified their needs and preferences. Design: We used metaethnography to conduct a metasynthesis of relevant studies. Data sources: We searched PubMed, EMBASE, PsycINFO, MEDLINE, and CINAHL. This report was prepared in accordance with the PRISMA statement. Results: Of the 7,237 retrieved studies, 27 met our inclusion criteria. Four themes emerged that reflected the decision-making process of children with cancer: (a) facing changes brought about by a health threat, (b) preparing for action, (c) asserting one's choice, and (d) internal and external influences. Conclusion: Children with cancer initially undergo a decision-making process. Respecting children's preferences, values, and emotions may help build trusting relationships and promote their decision-making capability. Future research should focus on children's emotions, cognition, development, and interactions with parents and health care professionals.

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来源期刊
CiteScore
3.10
自引率
0.00%
发文量
0
审稿时长
>12 weeks
期刊介绍: SPECIAL PATIENTS NEED SPECIAL NURSES Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing. The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care. Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include: Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis Combination therapies Hematologic and immunologic topics Holistic, family-centered supportive care Improvement of quality of life for children and adolescents with cancer Management of side effects from surgery, chemotherapy, and radiation Management of specific symptoms/diseases/co-infections Medication tolerance differences in children and adolescents Pain control Palliative and end of life care issues Pharmacologic agents for pediatrics/clinical trial results Psychological support for the patient, siblings, and families The dynamic articles cover a wide range of specific nursing concerns, including: Advanced practice issues Clinical issues Clinical proficiency Conducting qualitative and quantitative research Developing a core curriculum for pediatric hematology/oncology nursing Encouraging active patient participation Ethical issues Evaluating outcomes Professional development Stress management and handling your own emotions Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference. Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today! This journal is a member of the Committee on Publication Ethics (COPE).
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