“多年来我们一直被放大——现在你在显微镜下!”:有学习障碍的共同研究人员创建了一项在线调查,以挑战公众对学习障碍的理解。

Dorota Chapko, Pino Frumiento, Nalini Edwards, Lizzie Emeh, Donald Kennedy, David McNicholas, Michaela Overton, Mark Snead, Robyn Steward, Jenny M Sutton, Evie Jeffreys, Catherine Long, Jess Croll-Knight, Ben Connors, Sam Castell-Ward, David Coke, Bethany McPeake, William Renel, Chris McGinley, Anna Remington, Dora Whittuck, John Kieffer, Sarah Ewans, Mark Williams, Mick Grierson
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引用次数: 6

摘要

公众对学习障碍的态度通常是积极、包容和共情的。然而,这些发现并不能反映ld患者的生活经历。为了揭示这种差异,一组与ld合作的研究人员创建了第一个在线调查,以挑战公众对ld的理解,以对他们重要的方式提出问题,并代表他们如何看待自己。在这里,我们描述并评估了一个由学术和非学术专业人员组成的研究团队创建一个可访问的调查平台和在线调查的过程,这些专业人员有或没有ld或自闭症。通过这种包容性的研究过程,共同设计的调查达到了共同研究人员的期望,并得到了最初调查受访者的好评。在研究完成后,我们反思了共同研究者的观点,并考虑了我们在使用这些方法时遇到的困难和优势,以及它们对未来调查数据分析的潜在影响。
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"We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities.

Public attitudes towards learning disabilities (LDs) are generally reported as positive, inclusive and empathetic. However, these findings do not reflect the lived experiences of people with LDs. To shed light on this disparity, a team of co-researchers with LDs created the first online survey to challenge public understanding of LDs, asking questions in ways that are important to them and represent how they see themselves. Here, we describe and evaluate the process of creating an accessible survey platform and an online survey in a research team consisting of academic and non-academic professionals with and without LDs or autism. Through this inclusive research process, the co-designed survey met the expectations of the co-researchers and was well-received by the initial survey respondents. We reflect on the co-researchers' perspectives following the study completion, and consider the difficulties and advantages we encountered deploying such approaches and their potential implications on future survey data analysis.

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