Williams综合征青少年在线反应抑制认知训练方案的可行性和可接受性。

4区 医学 Q3 Medicine International Review of Research in Developmental Disabilities Pub Date : 2020-01-01 Epub Date: 2020-10-15 DOI:10.1016/bs.irrdd.2020.09.002
Natalie G Brei, Ana-Maria Raicu, Han Joo Lee, Bonita P Klein-Tasman
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引用次数: 1

摘要

威廉姆斯综合征(WS)是一种遗传性神经发育障碍,常伴有抑制困难。在线认知训练项目有望改善认知功能。目前还没有针对WS患者的此类干预措施,但为了探索大规模在线认知训练对这一人群的实用性,我们必须首先调查WS患者的家庭是否认为这些计划可行和可接受。20名年龄在10-17岁的WS患者和他们的父母一起参加了一个试点的在线认知训练项目,该项目使用视频会议软件进行实时监督。我们使用三份家长问卷来评估这种反应抑制训练的可行性和可接受性。报告了描述性数据,以衡量可行性和可接受性。总的来说,在线程序得到了家庭的积极反应。家长们可能会把这项研究推荐给其他人。他们表示,尽管对培训的有效性持中立态度,但培训是合乎道德和可接受的。治疗的频率和持续时间是家庭可以接受的(每周两次20- 30分钟的治疗;总共10次)。家庭提供了反馈并提出了改进建议,例如在日程安排上更灵活,减少在审查程序上花费的时间。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome.

Williams syndrome (WS) is a genetic neurodevelopmental disorder often accompanied by inhibitory difficulties. Online cognitive training programs show promise for improving cognitive functions. No such interventions have been developed for individuals with WS, but to explore the practicality of large-scale online cognitive training for this population, we must first investigate whether families of those with WS find these programs feasible and acceptable. Twenty individuals aged 10-17 years with WS, along with parents, participated in a pilot online cognitive training program supervised in real time using videoconference software. We evaluated the feasibility and acceptability of this response inhibition training using three parent questionnaires. Descriptive data are reported for the measures of feasibility and acceptability. Overall, the online procedures received a positive reaction from families. Parents were likely to recommend the study to others. They indicated training was ethical and acceptable despite feeling neutral about effectiveness. The frequency and duration of sessions were acceptable to families (two 20-to-30-min sessions per week; 10 sessions total). Families provided feedback and offered suggestions for improvement, such as more flexibility in scheduling and decreasing time spent in review of procedures.

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CiteScore
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