{"title":"癌症儿童生活质量与主要家庭照顾者照顾能力的关系","authors":"Angie López León, Sonia Carreño Moreno, Mauricio Arias-Rojas","doi":"10.1177/1043454220975695","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>The purpose of this study was to describe the caregiver's proxy-report of the quality of life (QoL) of children with cancer and the main family caregiver's competence, and to examine the role of said competence and other care-related variables in their proxy-reported QoL of children with cancer.</p><p><strong>Method: </strong>This was a cross sectional, correlation design study conducted with 97 main family caregivers of children between the ages of 8 and 12 years with cancer residing in Colombia. The following variables were collected: main family caregiver and child sociodemographic characteristics (Survey for Dyad Care; GCPC-UN-D), The Pediatric Quality of Life Inventory 4.0 Cancer Module, and the Competence Instrument (caregiver version).</p><p><strong>Results: </strong>The mean of the children's QoL was 102.0 points, and the caregivers' competence score was 211.24. Caregiver's competence (<i>t</i> = 5.814, <i>p</i> < .01), marital status (<i>t</i> = 1.925, <i>p</i> < .05), time as a caregiver (<i>t</i> = 2.087, <i>p</i> < .05), number of hours spent caring for the child (<i>t</i> = 2.621, <i>p</i> < .05), and caregiver's previous caring experiences (<i>t</i> = 2.068, <i>p</i> < .05) were found to influence caregiver's proxy-report of the QoL of children with cancer.</p><p><strong>Conclusions: </strong>High competence in main family caregivers positively influence caregiver's proxy-report of the QoL of children with cancer. Study results also suggest that nurses should consider the caregivers' sociodemographic characteristics such as marital status, time as a caregiver, number of hours spent caring for the child, and caregiver's previous experiences because those aspects influence main family caregivers' proxy-report about their children's QoL.</p>","PeriodicalId":50093,"journal":{"name":"Journal of Pediatric Oncology Nursing","volume":"38 2","pages":"105-115"},"PeriodicalIF":1.9000,"publicationDate":"2021-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1043454220975695","citationCount":"4","resultStr":"{\"title\":\"Relationship Between Quality of Life of Children With Cancer and Caregiving Competence of Main Family Caregivers.\",\"authors\":\"Angie López León, Sonia Carreño Moreno, Mauricio Arias-Rojas\",\"doi\":\"10.1177/1043454220975695\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>The purpose of this study was to describe the caregiver's proxy-report of the quality of life (QoL) of children with cancer and the main family caregiver's competence, and to examine the role of said competence and other care-related variables in their proxy-reported QoL of children with cancer.</p><p><strong>Method: </strong>This was a cross sectional, correlation design study conducted with 97 main family caregivers of children between the ages of 8 and 12 years with cancer residing in Colombia. The following variables were collected: main family caregiver and child sociodemographic characteristics (Survey for Dyad Care; GCPC-UN-D), The Pediatric Quality of Life Inventory 4.0 Cancer Module, and the Competence Instrument (caregiver version).</p><p><strong>Results: </strong>The mean of the children's QoL was 102.0 points, and the caregivers' competence score was 211.24. Caregiver's competence (<i>t</i> = 5.814, <i>p</i> < .01), marital status (<i>t</i> = 1.925, <i>p</i> < .05), time as a caregiver (<i>t</i> = 2.087, <i>p</i> < .05), number of hours spent caring for the child (<i>t</i> = 2.621, <i>p</i> < .05), and caregiver's previous caring experiences (<i>t</i> = 2.068, <i>p</i> < .05) were found to influence caregiver's proxy-report of the QoL of children with cancer.</p><p><strong>Conclusions: </strong>High competence in main family caregivers positively influence caregiver's proxy-report of the QoL of children with cancer. Study results also suggest that nurses should consider the caregivers' sociodemographic characteristics such as marital status, time as a caregiver, number of hours spent caring for the child, and caregiver's previous experiences because those aspects influence main family caregivers' proxy-report about their children's QoL.</p>\",\"PeriodicalId\":50093,\"journal\":{\"name\":\"Journal of Pediatric Oncology Nursing\",\"volume\":\"38 2\",\"pages\":\"105-115\"},\"PeriodicalIF\":1.9000,\"publicationDate\":\"2021-03-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://sci-hub-pdf.com/10.1177/1043454220975695\",\"citationCount\":\"4\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Pediatric Oncology Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/1043454220975695\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2020/12/3 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Oncology Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/1043454220975695","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2020/12/3 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 4
摘要
目的:本研究的目的是描述照顾者对癌症儿童生活质量(QoL)的代理报告和主要家庭照顾者的能力，并探讨该能力和其他护理相关变量在癌症儿童生活质量代理报告中的作用。方法:这是一项横断面相关设计研究，对居住在哥伦比亚的97名8至12岁癌症儿童的主要家庭照顾者进行了研究。收集以下变量:主要家庭照顾者和儿童社会人口学特征(Dyad Care调查;GCPC-UN-D)，儿童生活质量清单4.0癌症模块和能力工具(护理人员版本)。结果:儿童生活质量均值为102.0分，照顾者胜任力得分为211.24分。照料者能力(t = 5.814, p < 0.01)、婚姻状况(t = 1.925, p < 0.05)、照料时间(t = 2.087, p < 0.05)、照料儿童时间(t = 2.621, p < 0.05)、照料者以往的照料经历(t = 2.068, p < 0.05)影响照料者对癌症儿童生活质量的代理报告。结论:家庭主要照护者的高能力正影响照护者对癌症患儿生活质量的代理报告。研究结果还表明，护士应考虑照顾者的社会人口学特征，如婚姻状况、作为照顾者的时间、照顾儿童的时间以及照顾者以前的经历，因为这些方面会影响主要家庭照顾者对儿童生活质量的代理报告。
Relationship Between Quality of Life of Children With Cancer and Caregiving Competence of Main Family Caregivers.
Objective: The purpose of this study was to describe the caregiver's proxy-report of the quality of life (QoL) of children with cancer and the main family caregiver's competence, and to examine the role of said competence and other care-related variables in their proxy-reported QoL of children with cancer.
Method: This was a cross sectional, correlation design study conducted with 97 main family caregivers of children between the ages of 8 and 12 years with cancer residing in Colombia. The following variables were collected: main family caregiver and child sociodemographic characteristics (Survey for Dyad Care; GCPC-UN-D), The Pediatric Quality of Life Inventory 4.0 Cancer Module, and the Competence Instrument (caregiver version).
Results: The mean of the children's QoL was 102.0 points, and the caregivers' competence score was 211.24. Caregiver's competence (t = 5.814, p < .01), marital status (t = 1.925, p < .05), time as a caregiver (t = 2.087, p < .05), number of hours spent caring for the child (t = 2.621, p < .05), and caregiver's previous caring experiences (t = 2.068, p < .05) were found to influence caregiver's proxy-report of the QoL of children with cancer.
Conclusions: High competence in main family caregivers positively influence caregiver's proxy-report of the QoL of children with cancer. Study results also suggest that nurses should consider the caregivers' sociodemographic characteristics such as marital status, time as a caregiver, number of hours spent caring for the child, and caregiver's previous experiences because those aspects influence main family caregivers' proxy-report about their children's QoL.
期刊介绍：
SPECIAL PATIENTS NEED SPECIAL NURSES
Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing.
The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care.
Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include:
Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis
Combination therapies
Hematologic and immunologic topics
Holistic, family-centered supportive care
Improvement of quality of life for children and adolescents with cancer
Management of side effects from surgery, chemotherapy, and radiation
Management of specific symptoms/diseases/co-infections
Medication tolerance differences in children and adolescents
Pain control
Palliative and end of life care issues
Pharmacologic agents for pediatrics/clinical trial results
Psychological support for the patient, siblings, and families
The dynamic articles cover a wide range of specific nursing concerns, including:
Advanced practice issues
Clinical issues
Clinical proficiency
Conducting qualitative and quantitative research
Developing a core curriculum for pediatric hematology/oncology nursing
Encouraging active patient participation
Ethical issues
Evaluating outcomes
Professional development
Stress management and handling your own emotions
Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference.
Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today!
This journal is a member of the Committee on Publication Ethics (COPE).
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