儿童后窝肿瘤切除术后共济失调的国际物理治疗现状电子调查。

Helen Hartley, Bernie Carter, Lisa Bunn, Barry Pizer, Steven Lane, Ram Kumar, Elizabeth Cassidy
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摘要

目的:了解儿童后窝肿瘤术后共济失调的物理治疗投入的国际惯例。设计:一项电子调查,涵盖以下领域:参与者人口统计,治疗/干预,虚拟培训,治疗强度/时间,物理治疗管理的目标和结果。参与者:物理治疗师参与后窝肿瘤手术切除后儿童共济失调的治疗。参与者通过6个关键组联系;儿科肿瘤物理治疗网络(POPs),儿科特许物理治疗师协会(APCP),欧洲儿科神经病学学会(EPNS),国际儿科肿瘤学会(SIOP)-欧洲脑肿瘤组,后窝学会(PFS)和儿科肿瘤特殊兴趣小组(SIG)(美国物理治疗协会)。结果:共有96名物理治疗师参与:英国(n =53),欧洲其他国家(n = 23),美国/加拿大(n = 10),澳大利亚/新西兰(n = 10)。最常用的物理治疗干预措施是平衡练习、步态再教育和近端控制活动。治疗中最常用的辅助工具是助行器和矫形器。关于物理治疗的挑战报告有:急性出院后物理治疗投入的可用性降低,缺乏证据,辅助肿瘤治疗的影响,以及心理社会影响。结论:本电子调查提供了该领域国际物理治疗实践的初步范围综述。为进一步研究改善该人群共济失调的康复奠定了基础。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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E-Survey of Current International Physiotherapy Practice for Children with Ataxia Following Surgical Resection of Posterior Fossa Tumour.

Objective: To determine current international practice regarding physiotherapy input for children with ataxia following surgery for posterior fossa tumour. Design: An e-survey covering the following domains: participant demographics, treatment/ intervention, virtual training, intensity/timing of treatment, and aims and outcomes of physiotherapy management.

Participants: Physiotherapists involved in the management of children with ataxia following surgical resection of posterior fossa tumour. Participants were contacted via 6 key groups; Paediatric Oncology Physiotherapy Network (POPs), Association of Paediatric Chartered Physiotherapists (APCP), European Paediatric Neurology Society (EPNS), International Society of Paediatric Oncology (SIOP)-Europe Brain Tumour Group, Posterior Fossa Society (PFS), and Pediatric Oncology Special Interest Group (SIG) (American Physical Therapy Association).

Results: A total of 96 physiotherapists participated: UK (n =53), rest of Europe (n = 23), USA/ Canada (n = 10), and Australia/NZ (n = 10). The most common physiotherapy interventions used were balance exercises, gait re-education and proximal control activities. The most frequently used adjuncts to treatment were mobility aids and orthotics. Challenges reported regarding physiotherapy treatment were: reduced availability of physiotherapy input following discharge from the acute setting, lack of evidence, impact of adjuvant oncology treatment, and psychosocial impact.

Conclusion: This e-survey provides an initial scoping review of international physiotherapy practice in this area. It establishes a foundation for future research on improving rehabilitation of ataxia in this population.

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