{"title":"“面纱之外的养育”:孩子因癌症去世后继续的养育关系。","authors":"Christine Denhup","doi":"10.1177/10434542211041928","DOIUrl":null,"url":null,"abstract":"<p><p><b>Background:</b> Childhood cancer is the leading cause of illness-related death, leaving thousands of parents to experience bereavement. This article presents select findings about the nature of the continued parenting relationship, which is an essential theme of the parental bereavement experience. <b>Method:</b> Heideggerian phenomenology provided the philosophical underpinnings of this study, which aimed to describe the lived experience of bereaved parents who experienced the death of a child due to cancer. Van Manen's (1997) method guided data collection and analysis. Six parents participated in interviews to share what it has been like for them since their child's death. The researcher wrote analytic memos, documented detailed field notes, and used a member checking process to ensure trustworthiness of findings. <b>Results:</b> A structure of the lived experience of parental bereavement emerged, which included the essential theme of the continued parenting relationship. The parenting relationship continues throughout a parent's lifetime in spite of the child's physical absence, albeit in a different manner. This different nature of parenting is known as <i>parenting beyond the veil</i>. Bereaved parents continue to <i>parent beyond the veil</i> by engaging in meaningful activities, seeking activities that strengthen a deep connection with the child, and being open to comforting signs that enhance their continued relationship. <b>Discussion:</b> Parents believe sharing their experience can help nurses and other professionals understand the importance of their continued parenting relationship and their need to <i>parent beyond the veil</i> so that they can provide high quality care to bereaved parents in the future.</p>","PeriodicalId":50093,"journal":{"name":"Journal of Pediatric Oncology Nursing","volume":"38 6","pages":"364-374"},"PeriodicalIF":1.9000,"publicationDate":"2021-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"\\\"Parenting Beyond the Veil\\\": The Continued Parenting Relationship After a Child's Death Due to Cancer.\",\"authors\":\"Christine Denhup\",\"doi\":\"10.1177/10434542211041928\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p><b>Background:</b> Childhood cancer is the leading cause of illness-related death, leaving thousands of parents to experience bereavement. This article presents select findings about the nature of the continued parenting relationship, which is an essential theme of the parental bereavement experience. <b>Method:</b> Heideggerian phenomenology provided the philosophical underpinnings of this study, which aimed to describe the lived experience of bereaved parents who experienced the death of a child due to cancer. Van Manen's (1997) method guided data collection and analysis. Six parents participated in interviews to share what it has been like for them since their child's death. The researcher wrote analytic memos, documented detailed field notes, and used a member checking process to ensure trustworthiness of findings. <b>Results:</b> A structure of the lived experience of parental bereavement emerged, which included the essential theme of the continued parenting relationship. The parenting relationship continues throughout a parent's lifetime in spite of the child's physical absence, albeit in a different manner. This different nature of parenting is known as <i>parenting beyond the veil</i>. Bereaved parents continue to <i>parent beyond the veil</i> by engaging in meaningful activities, seeking activities that strengthen a deep connection with the child, and being open to comforting signs that enhance their continued relationship. <b>Discussion:</b> Parents believe sharing their experience can help nurses and other professionals understand the importance of their continued parenting relationship and their need to <i>parent beyond the veil</i> so that they can provide high quality care to bereaved parents in the future.</p>\",\"PeriodicalId\":50093,\"journal\":{\"name\":\"Journal of Pediatric Oncology Nursing\",\"volume\":\"38 6\",\"pages\":\"364-374\"},\"PeriodicalIF\":1.9000,\"publicationDate\":\"2021-11-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Pediatric Oncology Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/10434542211041928\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2021/9/8 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Oncology Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/10434542211041928","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2021/9/8 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
"Parenting Beyond the Veil": The Continued Parenting Relationship After a Child's Death Due to Cancer.
Background: Childhood cancer is the leading cause of illness-related death, leaving thousands of parents to experience bereavement. This article presents select findings about the nature of the continued parenting relationship, which is an essential theme of the parental bereavement experience. Method: Heideggerian phenomenology provided the philosophical underpinnings of this study, which aimed to describe the lived experience of bereaved parents who experienced the death of a child due to cancer. Van Manen's (1997) method guided data collection and analysis. Six parents participated in interviews to share what it has been like for them since their child's death. The researcher wrote analytic memos, documented detailed field notes, and used a member checking process to ensure trustworthiness of findings. Results: A structure of the lived experience of parental bereavement emerged, which included the essential theme of the continued parenting relationship. The parenting relationship continues throughout a parent's lifetime in spite of the child's physical absence, albeit in a different manner. This different nature of parenting is known as parenting beyond the veil. Bereaved parents continue to parent beyond the veil by engaging in meaningful activities, seeking activities that strengthen a deep connection with the child, and being open to comforting signs that enhance their continued relationship. Discussion: Parents believe sharing their experience can help nurses and other professionals understand the importance of their continued parenting relationship and their need to parent beyond the veil so that they can provide high quality care to bereaved parents in the future.
期刊介绍:
SPECIAL PATIENTS NEED SPECIAL NURSES
Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing.
The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care.
Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include:
Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis
Combination therapies
Hematologic and immunologic topics
Holistic, family-centered supportive care
Improvement of quality of life for children and adolescents with cancer
Management of side effects from surgery, chemotherapy, and radiation
Management of specific symptoms/diseases/co-infections
Medication tolerance differences in children and adolescents
Pain control
Palliative and end of life care issues
Pharmacologic agents for pediatrics/clinical trial results
Psychological support for the patient, siblings, and families
The dynamic articles cover a wide range of specific nursing concerns, including:
Advanced practice issues
Clinical issues
Clinical proficiency
Conducting qualitative and quantitative research
Developing a core curriculum for pediatric hematology/oncology nursing
Encouraging active patient participation
Ethical issues
Evaluating outcomes
Professional development
Stress management and handling your own emotions
Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference.
Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today!
This journal is a member of the Committee on Publication Ethics (COPE).