真正的韧性:透视COVID对患有医疗复杂性的儿童及其家庭的影响。

IF 3.6 Q1 PEDIATRICS Current pediatrics reports Pub Date : 2021-01-01 Epub Date: 2021-10-09 DOI:10.1007/s40124-021-00254-9
Sarah M Mitchell
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引用次数: 7

摘要

审查目的:患有医疗复杂性的弱势儿童是COVID-19大流行的无声受害者,他们受到缺乏资源和生病护理人员的影响。在本文中,我们将探讨疫情如何加剧这些患者及其家属已经经历的重大困难。提高认识将改善这一人群所经历的差异,并提高医疗保健提供者照顾他们的能力。最近的发现:患有复杂医疗问题的儿童数量正在迅速增加。他们面临着独特的环境,这可能导致护理方面的妥协。这一人群特别容易出现与COVID相关的并发症,因此入院时间可能更长,发病率更高。少数民族儿童也更容易受到严重疾病和死亡的影响。最后,获得姑息治疗的机会有限,这是照顾这些有终身医疗保健需求的儿童的一个重要部分。总结:患有复杂疾病的儿童情况独特,冠状病毒大流行对这一群体的整体影响尚不清楚。虽然医学界已经找到了适应的方法,但这些变化可能会增加这一人群的差距。鉴于生活在美国的医疗复杂性儿童数量的增加,重要的是要继续考虑他们在当前大流行中面临的独特挑战,并改善对儿童及其家庭的护理。
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True Resilience: A Look Inside COVID's Effect on Children with Medical Complexity and Their Families.

Purpose of review: Vulnerable children with medical complexity are silent victims of the COVID-19 pandemic, impacted by lack of resources and sick caregivers. In this article, we examine ways in which the pandemic has increased the significant difficulties already experienced by these patients and their families. Increased awareness will lead to improvement in the disparities experienced by this population and improve the ability of healthcare providers to care for them.

Recent findings: The number of children living with medical complexity is rapidly increasing. They face unique circumstances which can lead to compromise in care. This population is especially at risk for complications related to COVID, so may have a more prolonged admission with more morbidities. Children of ethnic minorities are also more impacted by severe illness and death. Finally, access to palliative care has been limited, which is a huge part in caring for these children who have life-long medical care needs.

Summary: Children with medical complexity have unique circumstances and the entirety of the effect of the coronavirus pandemic on this group is unknown. While the medical world has found ways to adapt, these changes can increase disparities for this population. Given the increase in number of children with medical complexity living in the USA, it is important to continue to consider the unique challenges they face in the current pandemic and improve the care delivery for both the child and his or her family.

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