COVID-19大流行期间如何定义和加强神经肌肉疾病的诊断和辅助途径:网络的概念

Q3 Medicine Acta Myologica Pub Date : 2021-12-31 eCollection Date: 2021-12-01 DOI:10.36185/2532-1900-060
Guja Astrea, Gemma Marinella, Caterina Agosto, Delia Gagliardi, Marina Grandis, Maria Giuliano, Luisa Politano
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引用次数: 0

摘要

COVID-19大流行的主要后果是增加了患者和医生之间的距离,限制了医学界比较经验和临床病例的机会。在此基础上,我们采用了一种创建网络的策略,目的是打破这些距离,统一护理和管理的过程。在这里,我们报告了我们的努力和研究的结果和前景。意大利骨髓学协会(Italian Association of Myology)为宏观领域组织了网络研讨会,旨在提高在COVID-19时代处理神经肌肉疾病的“非专业医生”的认识,在此收集并报告了有关该主题的演讲摘要。虽然宏观领域对新冠肺炎时代神经肌肉患者问题的应对方式不同,但它们都试图在医生之间建立一个网络,并提供教育和信息机会,其次要结果是共享护理和管理过程。远程医疗、虚拟会议和通过研究项目加强国家和国际网络是节点和共同点。由于其复杂性,神经肌肉疾病已经教会临床医生多学科对抗的重要性。2019冠状病毒病进一步加强了在临床医生和专家之间建立联系的必要性,即使是不同国籍的医生和专家,也需要建立联系,以保证患者获得尽可能最好的护理,但最重要的是,即使在关键时期也能获得和持续得到护理。对这些问题已经给出了充分的答案,尽管仍有很多需要改进的地方。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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How to define and enhance diagnostic and assistance pathways in neuromuscular diseases during the COVID-19 pandemic: the concept of network.

The main consequence of the COVID-19 pandemic has been to increase the distance between patients and their doctors and to limit the opportunities to compare experiences and clinical cases in the medical community. Based on this, we adopted a strategy to create networks with the ambition to break down these distances and to unify the process of care and management. Here we report the results and perspectives of our efforts and studies. A summary of the presentations on the topic, held during the webinars organized for macro-areas by the Italian Association of Myology with the aim of raising awareness among "non-expert doctors" who deal with neuromuscular disorders in the era of COVID-19 was collected and here reported. Although the macro-areas responded in different way to the problems of neuromuscular patients in the era of COVID-19, they all have tried to create a network between doctors and opportunity for education and information, with the secondary outcome to have shared process of care and management. Telemedicine, virtual meetings and the strengthening of national and international networks, through research projects, were the nodal and common points. Due to their complexity, neuromuscular diseases had already taught clinicians the importance of multidisciplinary confrontation. COVID-19 has further strengthened the need to create links between clinicians and experts, even of different nationalities, in order to guarantee to patients the best possible care, but above all, access and continuity of care even in critical periods. Adequate answers have been given to these problems, though there is still a lot to improve.

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来源期刊
Acta Myologica
Acta Myologica Medicine-Cardiology and Cardiovascular Medicine
CiteScore
3.70
自引率
0.00%
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0
期刊最新文献
PROCEEDINGS OF THE XXIII CONGRESS OF THE ITALIAN ASSOCIATION OF MYOLOGY: PadovaJune 8-10, 2023. Year 2023: a new look for Acta Myologica. Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic. VCP-related myopathy: a case series and a review of literature. Xp21 contiguous gene deletion syndrome presenting as Duchenne muscular dystrophy and glycerol kinase deficiency associated with intellectual disability: case report and review literature.
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