将 YouTube 作为甲状腺功能减退症患者的信息来源。

IF 2.5 Q3 ENDOCRINOLOGY & METABOLISM Minerva endocrinology Pub Date : 2023-12-01 Epub Date: 2022-02-15 DOI:10.23736/S2724-6507.22.03732-0
Natalia A Dułak, Karolina Anuszkiewicz, Rafał Trzciński, Giuseppe Fanciulli, Piotr Stogowski
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引用次数: 5

摘要

背景介绍甲状腺功能减退症是一种需要终身治疗的常见疾病。在我们的研究中,我们分析了作为患者 "健康信息来源 "的有关甲状腺功能减退症的 YouTube 视频的质量,以及视频质量与视频受欢迎程度之间(可能存在的)相关性:我们收录了通过以下搜索词获得的 96 个 YouTube 视频:"甲状腺功能减退症"、"桥本氏病"、"甲状腺功能不全 "和 "甲状腺激素低"。我们使用 DISCERN 标准评估视频质量,使用视频功率指数评估视频受欢迎程度:结果:两位评分者的平均 DISCERN 得分为 1.995,表明 YouTube 视频质量较差。有 68 个视频在视频能力指数(VPI)中获得了高分。有误导信息的视频的平均受欢迎程度得分高于所有受评视频的平均得分:YouTube上有关甲状腺功能减退症的视频总体质量较差。视频经常缺乏信息来源。此外,内容往往不完整,有时还包含误导性陈述。与甲状腺功能减退症患者打交道的医生应该意识到,他们向患者提供的信息和指导可能会被低质量和流行的替代性 "医学知识来源 "所 "调节"。
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YouTube as a patient-information source for hypothyroidism.

Background: Hypothyroidism is a very common disease that requires life-long treatment. In our study, we analyze the quality of the YouTube videos concerning hypothyroidism as a "source of health information" for the patients, and the (possible) correlation between video quality and video popularity.

Methods: We included 96 YouTube videos obtained by using the following search terms: "hypothyroidism," "Hashimoto's disease," "thyroid insufficiency," and "low thyroid hormone." We evaluated video quality by using the DISCERN criteria, and video popularity by using the Video Power Index.

Results: The mean DISCERN Score for both raters was 1.995, indicating poor YouTube videos' quality. Sixty-eight videos achieved a high score in the video power index (VPI). The mean popularity score for videos with misleading information was higher than the mean score for all evaluated videos.

Conclusions: The overall quality of YouTube videos regarding hypothyroidism was poor. Videos frequently lack the source of information presented. Besides, content is often incomplete, and sometimes includes misleading statements. Physicians dealing with hypothyroid patients should be aware of the possibility that information and instruction they give to patients could be "modulated" by the availability of both low quality and popular alternative "sources of medical knowledge."

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