从参与者不信任到研究者&机构可信度的范式转变:研究人员对黑人社区建立可信度观点的定性研究。

Community health equity research & policy Pub Date : 2024-01-01 Epub Date: 2022-09-20 DOI:10.1177/0272684X221117710
Cynterria Henderson, Taylor Scott, Bee Schinder, Erricka Hager, Felicia Savage Friedman, Elizabeth Miller, Maya I Ragavan
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引用次数: 1

摘要

引言:黑人社区在研究中的代表性严重不足,这在很大程度上是由于对研究的不信任。将建立信任的负担从社区转移到研究人员和研究机构是至关重要的,几个世纪以来,这些研究人员和研究机构一直在伤害黑人社区。在这项研究中,我们考察了研究人员对如何成为黑人识别参与者和社区值得信赖的观点。方法:我们对我院临床与转化科学研究所的研究人员进行了半结构化访谈。参与者是通过电子邮件招募的,如果他们想参加,就会回复研究小组。采访是通过Zoom进行的,时长60分钟,并进行了录音。我们使用了归纳主题数据分析方法。结果:16名研究人员参与了本研究,他们分别来自医学、公共卫生、心理学、教育和护理等领域。与会者一致认为,研究人员有责任建立信任,并指出通过公平招聘解决黑人参与者在研究中代表性不足的问题是多么关键,而且研究人员必须透明并参与互惠的研究实践。会议强调,社区合作研究是发展诚信的一种方式。最后,与会者指出,可信度也必须在机构层面建立,而不仅仅是由个别研究人员建立。讨论:据我们所知,这是第一批研究人员如何建立自己的可信度的研究之一,特别关注与黑人社区建立信任。建立学术中心的可信度需要明确的培训和资源。
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Shifting the Paradigm From Participant Mistrust to Researcher & Institutional Trustworthiness: A Qualitative Study of Researchers' Perspectives on Building Trustworthiness With Black Communities.

Introduction: Black communities are deeply underrepresented in research, due, in large part, to research mistrust. It is critical to shift the burden of trust building from communities to researchers and research institutions, which have perpetrated harm against Black communities for centuries. In this study, we examine researchers' perspectives on how to become trustworthy to Black-identifying participants and communities.

Methods: We conducted semi-structured interviews with researchers affiliated with our institution's Clinical and Translational Science Institute. Participants were recruited through email and responded to the study team if they wished to participate. Interviews occurred through Zoom, took 60 minutes, and were audio recorded. We used an inductive thematic data analysis approach.

Results: Sixteen researchers, who were affiliated with medicine, public health, psychology, education, and nursing, participated in this study. Participants agreed that researchers bear the responsibility for building trust and noted how critical it is to address the underrepresentation of Black participants in research through equitable recruitment and that researchers must be transparent and engage in reciprocal research practices. Community-partnered research was highlighted as a way to develop trustworthiness. Finally, participants noted that trustworthiness must also be built at the institutional level, rather than just by individual researchers.

Discussion: To our knowledge, this is one of the first studies to examine researchers' perspectives on how to build their own trustworthiness, with a specific focus on trust-building with Black communities. Explicit training and resources are needed to build trustworthiness into academic centers.

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