在临床实践中实施物理治疗亨廷顿舞蹈病指南。

IF 2.1 Q3 NEUROSCIENCES Journal of Huntington's disease Pub Date : 2022-01-01 DOI:10.3233/JHD-220532
Una Jones, Deborah A Kegelmeyer, Anne D Kloos
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引用次数: 0

摘要

背景:最近出版的亨廷顿舞蹈病(HD)物理治疗实践临床实践指南应整合到实践中,以制定干预措施,使亨廷顿舞蹈病患者实现个性化目标。欧洲亨廷顿病网络物理治疗工作组旨在支持和启用亨廷顿病社区物理治疗中最佳证据的使用。临床实践指南的成功实施需要了解治疗师实施的促进因素和障碍。目的:探讨实施新近发表的指导HD物理治疗实践的临床建议的促进因素和障碍。方法:通过HD网络在全球范围内进行在线调查。收集的数据包括人口统计信息和对一系列指定的促进因素的同意/不同意以及实施六项物理治疗指南建议的障碍。≥70%的共识水平被设定为同意/不同意的指示。结果:32名在不同环境工作的物理治疗师做出了回应。同事的支持(81% -91%同意)、个性化物理治疗计划(72% -88%同意)和物理治疗师在HD方面的专业知识(81% -91%同意)被报告为促进因素。HD患者的主要障碍是行为障碍(72% -81%一致)和认知障碍(75% -81%一致)以及动机低下(72% -78%一致)。结论:物理治疗师同意他们在HD方面的专业知识和同事的支持有助于制定个性化治疗计划。进一步的工作需要开发创造性的方法,使HD的认知和行为方面的障碍能够得到管理,从而使治疗计划得以实施。
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Implementing Physiotherapy Huntington's Disease Guidelines in Clinical Practice.

Background: The recently published clinical practice guideline for physiotherapy practice for Huntington's disease (HD) should be integrated into practice to develop interventions that enable people with HD to achieve personalised goals. The European Huntington's Disease Network Physiotherapy Working Group aims to support and enable the use of best evidence in physiotherapy for the HD community. Successful implementation of the clinical practice guidelines requires an understanding of facilitators and barriers to therapist implementation.

Objective: To explore facilitators and barriers to implementing recently published clinical recommendations that guide physiotherapy practice for HD.

Methods: An online survey was distributed globally through HD networks. Data collected included demographic information and agreement/disagreement with a series of named facilitators and barriers to implementation of each of the six physiotherapy guideline recommendations. A consensus level of≥70% agreement was set as indicative of agreement/disagreement.

Results: Thirty-two physiotherapists working in a range of settings responded. Support from colleagues (81-91% agreement), an individualised physiotherapy plan (72-88% agreement) and physiotherapist's expertise in HD (81-91% agreement) were reported as facilitators. The main barriers were behavioural (72-81% agreement) and cognitive (75-81% agreement) impairments and low motivation (72-78% agreement) in persons with HD.

Conclusion: Physiotherapists agree that their expertise in HD and support from colleagues facilitate the development of individualised treatment plans. Further work needs to develop creative ways in which barriers specific to the cognitive and behavioural aspects of HD can be managed to enable treatment plans to be implemented.

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来源期刊
CiteScore
4.80
自引率
9.70%
发文量
60
期刊最新文献
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