舒适护理对患有严重颅面畸形的新生儿有作用吗?病例报告和生活质量文献综述。

IF 1.2 4区 医学 Q3 DENTISTRY, ORAL SURGERY & MEDICINE Cleft Palate-Craniofacial Journal Pub Date : 2024-04-01 Epub Date: 2022-11-16 DOI:10.1177/10556656221138884
Jennifer J Ferraro, Jill S Jeffe, Michelle Y Seu, Amir Aminzada, Christina Tragos
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引用次数: 0

摘要

本文旨在确定如何定义和评估严重颅面畸形病例的生活质量(QoL),以及这些考虑因素对患有这些疾病的新生儿姑息治疗可能产生的影响。我们的文献综述发现,没有足够的证据表明颅面畸形会导致质量生活水平持续低下。根据这些研究结果,并按照目前可接受的新生儿伦理护理标准,除极少数情况外,应始终对孤立性颅面畸形患者进行抢救,正如本报告中对患者的处理所显示的那样。
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Is There a Role for Comfort Care in Neonates With Severe Craniofacial Anomalies? Case Report and Review of Quality-of-Life Literature.

This article aims to determine how quality of life (QoL) is defined and assessed in cases of severe craniofacial anomalies, as well as the impact such considerations may have on the treatment of a neonate with these conditions with respect to palliative neonatal care. Our literature review found insufficient evidence to suggest that craniofacial anomalies result in consistently poor QoL. Based on these findings and in line with the current acceptable standards for the ethical care of neonates, with the exception of rare cases, resuscitative efforts should always be performed on patients with isolated craniofacial anomalies, as demonstrated in the management of this reported patient.

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来源期刊
CiteScore
2.70
自引率
36.40%
发文量
215
期刊介绍: The Cleft Palate-Craniofacial Journal (CPCJ) is the premiere peer-reviewed, interdisciplinary, international journal dedicated to current research on etiology, prevention, diagnosis, and treatment in all areas pertaining to craniofacial anomalies. CPCJ reports on basic science and clinical research aimed at better elucidating the pathogenesis, pathology, and optimal methods of treatment of cleft and craniofacial anomalies. The journal strives to foster communication and cooperation among professionals from all specialties.
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