遗传和罕见疾病信息中心(GARD)。

Amber Hoskins
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引用次数: 85

摘要

遗传和罕见疾病信息中心(GARD)是一个数据库,致力于帮助任何可能寻求有关罕见疾病的帮助和知识的人。这项公共卫生资源是由2002年的《罕见病法案》启动的,并利用转化科学来加强研究程序。人们可以使用这个资源来寻找支持、疾病事实、正在进行的研究信息和可用的治疗方法。GARD数据库对于任何想要增加他们对罕见疾病的知识以及如何帮助那些患有罕见疾病的人来说都是一个极好的指南。
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Genetic and Rare Diseases Information Center (GARD).

The Genetic and Rare Diseases Information Center (GARD) is a database dedicated to aiding anyone who may be seeking assistance and knowledge regarding rare diseases. This public health resource was put into motion by the Rare Diseases Act of 2002, and uses Translational Science to enhance research procedures. People can use this resource to find support, disease facts, ongoing research information, and available treatments. The GARD database is an excellent guide for anyone wanting to increase their knowledge of rare diseases and how to help those who have a rare disorder.

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来源期刊
Medical Reference Services Quarterly
Medical Reference Services Quarterly Social Sciences-Library and Information Sciences
CiteScore
4.00
自引率
0.00%
发文量
33
期刊介绍: This highly acclaimed, peer-reviewed journal is an essential working tool for medical and health sciences librarians. For those professionals who provide reference and public services to health sciences personnel in clinical, educational, or research settings, Medical Reference Services Quarterly covers topics of current interest and practical value in the areas of reference in medicine and related specialties, the biomedical sciences, nursing, and allied health. This exciting and comprehensive resource regularly publishes brief practice-oriented articles relating to medical reference services, with an emphasis on user education, database searching, and electronic information. Two columns feature the Internet and informatics education.
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