“音乐疗法从未出现在桌面上”:年轻自闭症儿童父母的观点。

IF 1.9 3区 医学 Q1 Arts and Humanities Journal of Music Therapy Pub Date : 2022-09-19 DOI:10.1093/jmt/thac008
Eugenia Hernandez-Ruiz, Gabriel Lehrer
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引用次数: 1

摘要

音乐干预的父母指导正在成为有年幼自闭症儿童的家庭的一种可行模式,然而在以前的研究中招募困难已经很明显。了解家长对早期干预服务的看法对于确保干预对所有家庭成员都是可接受的、可行的和有效的至关重要。为了了解父母对这种类型的父母教育可能产生的抵制,我们探索了音乐疗法、研究和自闭症儿童父母的父母指导的观点。14位家长参加了虚拟焦点小组讨论他们的经历。我们使用描述现象学方法来揭示他们经验的本质。我们的研究结果表明,与我们的先入之见相反,参与者并没有表现出对音乐治疗、研究或父母指导的负面倾向。相反,大多数参与者对音乐治疗服务知之甚少或一无所知。总的来说,他们的研究经验有限,只有两名参与者直接体验过音乐疗法。一些参与者在音乐治疗之外有不同程度的父母参与或父母指导的经历,并分享了积极的经历。父母似乎愿意并渴望学习音乐策略来支持他们的孩子,并看到了使用音乐对孩子发展的价值。第一次接触的提供者(即早期干预医生和诊断医生)和社交媒体似乎对父母的决策有影响,因为他们在诊断后不久就选择了早期干预服务。鼓励音乐治疗组织设计有针对性的努力,通过这些资源提供有关音乐治疗的信息。
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"Music Therapy Was Never on the Table": Perspectives of Parents of Young Autistic Children.

Parent coaching of music interventions is emerging as a viable model for families with young autistic children, yet recruitment difficulties have been apparent in previous studies. Understanding parent perspectives of early intervention services is critical to ensure that interventions are acceptable, feasible, and effective for all family members. In order to understand possible parental resistance to this type of parent education, we explored perspectives regarding music therapy, research, and parent coaching in parents of young autistic children. Fourteen parents attended virtual focus groups to discuss their experiences. We used a descriptive phenomenological approach to uncover the essence of their experience. Our findings indicate that, contrary to our preconceptions, participants did not show negative dispositions towards music therapy, research, or parent coaching. Instead, most participants had very little or no knowledge of music therapy services. They had limited experience with research in general, and only two participants had experienced music therapy directly. Several participants had varying amounts of experience with parent participation or parent coaching outside of music therapy and shared positive experiences with it. Parents seemed willing and eager to learn music strategies to support their children and saw value in the use of music for their child's development. First-contact providers (i.e., early interventionists and diagnosticians) and social media seem influential in parents' decision-making as they navigate early intervention services soon after diagnosis. Music therapy organizations are encouraged to design targeted efforts to make information on music therapy available through these sources.

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来源期刊
Journal of Music Therapy
Journal of Music Therapy REHABILITATION-
CiteScore
3.50
自引率
5.30%
发文量
13
期刊最新文献
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