检查母亲在照顾患有癌症的孩子时的支持作用。

Fariba Mazhari, Shahin Heidari, Sedigheh Iranmanesh, Sakineh Sabzevari
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引用次数: 0

摘要

背景:儿童癌症对患者及其家属来说是一种压力经历;它对家庭在情感上、心理上和经济上都有深远的影响。母亲的支持作用影响到儿童的治疗结果和所有家庭成员的健康。目的:本研究旨在描述患有癌症儿童的母亲的经历。方法:采用有目的抽样的方法,对14名癌症患儿的母亲进行调查。深入的半结构化访谈采用定性归纳内容分析。数据分析采用Graneheim等人(2004)的方法。研究发现:根据数据分析,母亲的支持作用可以通过四个子主题来描述:“真诚地陪伴生病的孩子”;“保持家庭团结,加强家庭凝聚力”;“为同伴提供富有同情心的合作关怀”;以及“赋予自己力量,掌控自己的生活”。从这项研究中提取的主要主题是“牺牲”。结论:本研究结果表明,母亲的支持角色依赖于自身的个人力量,不仅给予孩子、家庭和同伴照顾,而且还推动了母亲的个人成长和赋权。更深入地了解母亲的支持性作用,可能会提高护理质量,并促进进一步的儿科姑息治疗方法。
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Examining the mother's supportive role caring for a child with cancer.

Background: Childhood cancer is a stressful experience for patients and their families; it has a profound effect on families emotionally, psychologically and financially. The mother's supportive role affects the child's treatment outcomes and the health of all family members. Aims: This study was conducted to describe the experiences of mothers of children with cancer. Methods: A total of 14 mothers of children with cancer were recruited using purposive sampling. In-depth semi-structured interviews were conducted using a qualitative inductive content analysis. Data were analysed using Graneheim et al's (2004) approach. Findings: According to data analysis, the mother's supportive role can be depicted across four subthemes: 'being genuinely present with a sick child'; 'keeping the family together and strengthening its cohesion'; 'providing compassionate collaborative care for peers'; and 'empowering the self and taking charge of one's own life'. The main overarching theme extracted from this study was 'sacrifice'. Conclusion: This study results suggest that the mothers' supportive role is relying on their own personal power, in which they not only give the care to the child, family and counterparts, but also drive personal growth and empowerment of mothers. A deeper understanding of mothers' experiences of their supportive role may enhance the quality of care and promote further paediatric approaches to palliative care.

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来源期刊
CiteScore
1.20
自引率
10.00%
发文量
65
期刊介绍: Since its launch in 1995, International Journal of Palliative Nursing (IJPN) has been committed to promoting excellence in palliative and hospice care. It is now established as the leading journal for nurses working in this most demanding profession, covering all aspects of palliative care nursing in a way which is intelligent, helpful and accessible, and so useful in daily practice. The aim of IJPN is to provide nurses with essential information to help them deliver the best possible care and support for their patients. Each issue contains an unparalleled range of peer-reviewed clinical, professional and educational articles, as well as helpful and informative information on practical, legal and policy issues of importance to all palliative nurses.
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