一项探索痴呆症护理中性别差异的混合方法研究。

Dementia (London, England) Pub Date : 2023-11-01 Epub Date: 2023-09-23 DOI:10.1177/14713012231201595
Vincent O Poisson, Roslyn G Poulos, Adrienne L Withall, Ann Reilly, Leanne Emerson, Claire M C O'Connor
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引用次数: 0

摘要

很少有研究调查男性痴呆症患者护理人员的经历,也很少有研究专门调查男性和女性痴呆症患者的护理人员在护理角色方面是否存在差异。因此,这项研究旨在调查痴呆症患者的男性护理人员是否与女性护理人员不同地对待护理角色。使用混合研究方法分析了167名调查参与者(24名男性和143名女性)的数据。使用线性回归分析参与者的人口统计数据和标准化负担和应对量表得分。参与者对开放式问题的书面回答采用以霸权男性气质理论为基础的主题分析进行了分析。在护理人员的应对策略或自我报告的护理人员负担方面没有发现显著的性别差异。然而,定性分析揭示了强烈的主题性别差异,如:寻求帮助的性别障碍;性别服务偏好;关于住院护理的性别考虑;负担的性别表达;以及儿子缺席和女儿精疲力竭的主题。这项研究发现,痴呆症患者的男性护理人员寻求帮助的方式与女性护理人员不同,通常专注于处理功能性任务,避免表现出情绪,尽管报告称护理人员的负担相似。与男性护理人员建立融洽关系应从围绕功能问题的对话开始,而不是评估护理角色的情感影响。这些发现加强了对痴呆症患者男性护理人员未满足的需求进行更多定性研究的必要性,为设计男性友好的干预措施提供信息,从而促进男性护理人员及时获得服务。
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A mixed method study exploring gender differences in dementia caregiving.

Few studies have investigated the experience of male carers of people with dementia and fewer specifically examined whether male and female carers of people with dementia differ in their approach to the caring role. As such, this research set-out to investigate whether male carers of people with dementia approach the caring role differently to female carers. Data from 167 survey participants (24 males and 143 females) were analysed using a mixed research methodology. Participants' demographics and scores on standardised burden and coping scales were analysed using linear regression. Participants' written responses to open-ended questions were analysed using thematic analysis anchored in theories of hegemonic masculinity. No significant gender differences were identified in carers' coping strategies or self-reported carer burden. However, qualitative analysis revealed strong thematic gender differences like: gendered barriers to help-seeking; gendered service preference; gendered considerations about residential care; gendered expression of burden; and themes of the absent son and exhausted daughter. This research identified that male carers of people with dementia approach help-seeking differently to female carers, typically focusing on addressing functional tasks and refraining from showing emotions, this despite reporting similar carer burden. Rapport building with male carers should start with conversations around functional issues rather than assessing the emotional impact of the caring role. The findings reinforce the need for more qualitative research into the unmet needs of male carers of people with dementia, to inform the design of male-friendly interventions which could facilitate timely access to services by male carers.

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