痴呆和精神分裂症患者照护者负担和耻辱感的比较研究

S. Parveen, A. Mehra, Krishan Kumar, S. Grover
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引用次数: 1

摘要

目的:本研究旨在评估痴呆症患者护理人员所面临的耻辱程度。次要目的是评估照顾者所面临的耻辱感与照顾者负担的关系,并比较痴呆和精神分裂症患者的照顾者所遇到的耻辱感和照顾者负担。方法:这是一项横断面研究,50名痴呆症患者和他们的照顾者以及50名精神分裂症患者和他们的照顾者。这两种疾病的诊断都是根据《诊断和统计手册》第五版进行的。采用精神疾病照顾者污名化量表和家庭负担访谈表对研究对象进行评估。结果:精神分裂症患者的照顾者处于照顾者角色的时间较长,且没有有偿就业。痴呆症患者的照顾者通常是患者的孩子。痴呆症患者的护理人员在所有领域报告了显著较低的耻辱感水平,并报告了较低的总耻辱感得分。即使在控制了人口统计学和护理变量之后,显著差异仍然存在。同样,精神分裂症患者的照顾者在所有领域都报告了显著更高的负担水平,除了对他人心理健康领域的影响,即使在控制了人口统计学和照顾变量之后,这种影响仍然存在。结论:与精神分裂症患者相比,痴呆患者的照顾者即使在控制了不同的混杂变量后,也会经历更低的耻辱感和照顾者负担。
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A comparative study of caregiver burden and stigma among the caregivers of patients with dementia and schizophrenia
Aim: This study aimed to assess the level of stigma faced by the caregivers of patients with dementia. The secondary objective was to evaluate the association of stigma faced by the caregivers with caregiver burden and compare the stigma and caregiver burden encountered by the caregivers of patients with dementia and schizophrenia. Methodology: This was a cross-sectional study, 50 patients with dementia and their caregivers and 50 patients with schizophrenia and their caregivers. Diagnosis of both the disorders was made as per the Diagnostic and Statistical Manual, Fifth Revision. The study participants were assessed on the Stigma Scale for caregivers of people with mental illness and family burden interview schedule. Results: Caregivers of patients with schizophrenia had been in the caregiver role for a longer duration and were not on paid employment. Caregivers of patients with dementia were more often children of the patients. Caregivers of patients with dementia reported a significantly lower level of stigma in all the domains as well as reported lower total stigma score. The significant difference persisted even after controlling for demographic and caregiving variables. Similarly, caregivers of patients with schizophrenia reported a significantly higher level of burden on all the domains, except for effect on the domain of mental health of others which persisted even after controlling for demographic and caregiving variables. Conclusion: Caregivers of patients with dementia experience a lower level of stigma and caregiver burden, compared to patients with schizophrenia even after controlling for different confounding variables.
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