认知障碍患者照顾者负担的预测因素

Mijung Lee, Ishan C. Williams
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Self-identified caregivers (n = 304) who provided care for individuals with cognitive impairment (ICI), and who were living in the community were participants in the study. Results The overall model explained 38.4% of the variance in caregiver burden (F = 20.48, p < 0.001). When examining each factor, perceived difficulty in medical/nursing tasks (β = 0.38, p < 0.001) was the most influential factor, followed by caregivers’ physical health (β = −0.27, p < 0.001), income (β = −0.13, p = 0.01), and level of the care coordination (β = 0.12, p = 0.02). Discussion Although caregivers’ involvement in healthcare-related activities for ICI is necessary, this involvement has a considerable impact on caregiver burden. Healthcare providers should be cognizant of caregiver burden related to healthcare-related activities. 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引用次数: 1

摘要

非正式的护理人员,主要是家庭成员或朋友,经常被要求从事医疗/护理任务,并在复杂的医疗保健系统中导航。目前尚不清楚这些活动是否会影响照顾者的负担。因此,本研究的目的是在考虑医疗保健相关因素(照顾者对执行医疗/护理任务的感知、护理协调和住院次数)的情况下,研究照顾者负担的预测因素。方法对2015年美国护理调查的横断面调查数据进行二次分析。数据由全国护理联盟和美国退休人员协会(AARP)收集。自我认定的照顾者(n = 304)为认知障碍患者(ICI)提供照顾,并生活在社区中,是研究的参与者。结果整体模型解释了38.4%的照顾者负担方差(F = 20.48, p < 0.001)。在检查各因素时,对医疗/护理任务的感知难度(β = 0.38, p < 0.001)是影响最大的因素,其次是照顾者的身体健康(β = - 0.27, p < 0.001)、收入(β = - 0.13, p = 0.01)和护理协调水平(β = 0.12, p = 0.02)。尽管护理人员参与ICI的医疗保健相关活动是必要的,但这种参与对护理人员负担有相当大的影响。医疗保健提供者应认识到与医疗保健相关活动有关的照顾者负担。此外,研究人员应该开发干预措施和社区服务,以减少照顾者在履行其职责方面的困难。
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Predictive factors on caregiver burden in caregivers of individuals with cognitive impairment
Introduction Informal caregivers, mostly family members or friends, have often been required to engage in medical/nursing tasks and to navigate complex healthcare systems. It is unclear whether those activities impact caregiver burden. Therefore, the purpose of this study was to examine predictive factors of caregiver burden in consideration of healthcare-related factors (caregivers’ perception of performing medical/nursing tasks, care coordination, and number of hospitalizations). Methods Secondary analysis of cross-sectional survey data taken from the Caregiving in the U.S. 2015 was conducted. Data were collected by the National Alliance for Caregiving and the American Association of Retired Persons (AARP). Self-identified caregivers (n = 304) who provided care for individuals with cognitive impairment (ICI), and who were living in the community were participants in the study. Results The overall model explained 38.4% of the variance in caregiver burden (F = 20.48, p < 0.001). When examining each factor, perceived difficulty in medical/nursing tasks (β = 0.38, p < 0.001) was the most influential factor, followed by caregivers’ physical health (β = −0.27, p < 0.001), income (β = −0.13, p = 0.01), and level of the care coordination (β = 0.12, p = 0.02). Discussion Although caregivers’ involvement in healthcare-related activities for ICI is necessary, this involvement has a considerable impact on caregiver burden. Healthcare providers should be cognizant of caregiver burden related to healthcare-related activities. Moreover, researchers should develop interventions and community services to decrease caregivers’ difficulty in performing their roles.
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来源期刊
CiteScore
3.10
自引率
14.30%
发文量
15
期刊介绍: The International Journal of Care Coordination (formerly published as the International Journal of Care Pathways) provides an international forum for the latest scientific research in care coordination. The Journal publishes peer-reviewed original articles which describe basic research to a multidisciplinary field as well as other broader approaches and strategies hypothesized to improve care coordination. The Journal offers insightful overviews and reflections on innovation, underlying issues, and thought provoking opinion pieces in related fields. Articles from multidisciplinary fields are welcomed from leading health care academics and policy-makers. Published articles types include original research, reviews, guidelines papers, book reviews, and news items.
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