Katarzyna Butna, A. Pyszora, A. Adamczyk, M. Krajnik
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Practical aspects of nursing care provided to patients diagnosed with amyotrophic lateral sclerosis receiving home mechanical ventilation
The article presents the practical aspects of home care provided to patients diagnosed with amyotrophic lateral sclerosis (ALS) receiving mechanical ventilation. It discusses issues related to qualifying patients diagnosed with ALS for mechanical ventilation, patients’ palliative care at home and education of caregivers. The most important nursing problems facing caregivers and recommended approaches are discussed. Attention is drawn to the role of nurses who provide palliative care to patients staying at home, particularly to their important role in educating patients’ families.
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