自闭症谱系障碍的概念:加纳自闭症儿童父母知识共享协议的研究

IF 1.1 Q4 PSYCHOLOGY, DEVELOPMENTAL Advances in Autism Pub Date : 2021-07-09 DOI:10.1108/AIA-12-2020-0074
Bernard Kissi-Abrokwah, Kwame Kodua-Ntim
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引用次数: 1

摘要

目的探讨自闭症谱系障碍(ASD)患儿家长之间的知识共享行为。设计/方法/方法本研究基于定性的哲学基础,使用现象学案例研究设计来深入了解被诊断为ASD的孩子的父母如何在他们之间分享知识。这项研究的人群包括加纳被诊断为自闭症谱系障碍的孩子的父母。本研究的研究样本是12位父母,从加纳的4个自闭症意识中心中选出,通过使用焦点小组讨论获得数据,并借助主题分析进行分析。研究结果显示,自闭症儿童家长分享知识的方式包括行动后检讨/经验教训、头脑风暴、辅导、辅导系统、讨论论坛、面对面会议、记录文件、同侪协助及讲故事。最后,该研究还揭示了自闭症儿童的父母使用的知识共享实践有助于他们的日常参与。社会影响社会工作者培训的一个方面应侧重于如何帮助自闭症儿童的父母、家庭和邻居。政府应该通过必要的部门和机构建立一个社会支持系统,帮助有自闭症儿童的父母和家庭。辅导员应尽早为有自闭症儿童的父母提供服务,以避免或改善这些父母的一些情感和心理挑战。原创性/价值本文全面概述了知识共享如何在加纳改变个人学习和接受自闭症的状况。
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The concept of autism spectrum disorder: a study on knowledge sharing protocol among parents with autistic children in Ghana
Purpose The purpose of this paper is to identify knowledge sharing practices used among parents with children diagnosed with autism spectrum disorder (ASD). Design/methodology/approach The study was based on qualitative philosophical foundations, where phenomenological case study design was used to make an in-depth understanding of how parents whose children are diagnosed with ASD shared knowledge among themselves. The population for this research consists of parents whose children have been diagnosed with ASD in Ghana. The study sampled for the study was 12 parents and was selected from 4 autism awareness centres in Ghana to obtain data through the use of focus group discussion and analysed with the aid of thematic analysis. Findings The study showed that the dimensions of knowledge sharing practices used by parents with autistic children were after-action review/lesson learnt, brainstorming, mentoring, coaching system, discussion forum, face-to-face meeting, documentation, peer assistance and storytelling. Finally, the study also revealed that knowledge sharing practices used by parents with autistic children help them in their daily engagement. Social implications An aspect of the training of social workers should focus on how to assist parents, family and neighbours of children with ASD. The government through the needed ministries and agencies should create a social support system to assist parents and families with children with ASD. Counsellors should avail their services to parents with children with ASD as early as possible to avoid or ameliorate some of the emotional and psychological challenges of these parents. Originality/value The paper offers a comprehensive overview on how knowledge sharing transforms the individual to learn and accept autistic condition in Ghana.
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来源期刊
Advances in Autism
Advances in Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
2.30
自引率
0.00%
发文量
13
期刊介绍: Advances in Autism is unique in its focus on the health and care aspects and outcomes for people with autism. The journal''s content is international in focus and peer-reviewed. It includes the following: research-based articles evidence-based clinical and support articles articles on policy and advances in services where these can be internationally applied. Key areas of research covered include: clinical developments people''s experience through qualitative research policy debates and outcomes inclusion and quality of life developmental issues population and epidemiological studies services developments evidence-based reviews of key practice issues.
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