新冠肺炎对隔离期间血红蛋白病患者日常生活的影响:希腊四家医院的经验

IF 0.6 Q4 HEMATOLOGY Thalassemia Reports Pub Date : 2022-06-06 DOI:10.3390/thalassrep12020008
S. Delicou, A. Xydaki, K. Manganas, E. Koullias, L. Evliati, Chryssoula Kalkana, M. Diamantidis, Achilles Manafas, Marianna Katsatou, Leonidas Roumpatis, Theodoros Aforozis
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引用次数: 2

摘要

在大流行期间,人们害怕感染病毒,这会导致焦虑、丧失目标和抑郁。本研究旨在评估大流行期间血红蛋白病患者的社会和心理影响,以及对家庭护理的影响。材料和方法:通过分层抽样开发和分发的匿名问卷,对来自希腊国家卫生系统医院四个地中海贫血和镰状细胞病单位的130名患者进行了调查。结果:输血依赖型地中海贫血、输血镰状细胞病和其他血红蛋白病共130例。在大流行期间,患者的主要关切是输血的可负担性。在封锁期间,患者情绪波动,日常生活因缺乏基本物资和与朋友和家人的沟通而中断。他们的饮食习惯,获得锻炼,以及在较小程度上,他们的财务状况都在他们的日常生活中受到影响。必须强调的是,虽然获得保健服务的机会在药物治疗和对实际疾病的定期就诊方面没有受到影响,但在系统监测并发症方面却受到影响。
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The Effect of COVID-19 on Hemoglobinopathy Patients’ Daily Lives While Quarantined: Four Greek Hospitals’ Experiences
During a pandemic, people are fearful of becoming infected with the virus, which causes anxiety, loss of purpose, and depression. This study aimed to evaluate the social and psychological impact, as well as the impact on homecare, of patients with hemoglobinopathies during the pandemic. Material and Methods: In total, 130 patients from four Thalassemia and Sickle Cell Disease Units of the National Health System of Greece Hospitals were examined via an anonymous questionnaire developed and distributed through stratified sampling. Results: Transfusion-dependent thalassemia, transfused sickle cell disease, and other hemoglobinopathies were represented by 130 patients. During the pandemic, the main concern of patients was the affordability of blood for transfusion. During the lockdown, patients’ moods varied, and their daily lives were disrupted by a lack of access to basic goods and communication with friends and family. Their eating habits, access to exercise, and, to a lesser extent, their financial situation have all been affected in their daily lives. It is crucial to highlight that while access to health services did not suffer in terms of medication and regular visits for their actual disease, it did suffer in terms of the systematic monitoring of complications.
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来源期刊
Thalassemia Reports
Thalassemia Reports HEMATOLOGY-
自引率
0.00%
发文量
17
审稿时长
10 weeks
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