儿童肿瘤家庭谈话干预:患儿对可行性及潜在效果的描述

IF 1 4区 医学 Q3 NURSING Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2022-05-01 DOI:10.1177/27527530221068423
Rakel Eklund, M. Lövgren
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引用次数: 3

摘要

背景:尽管有家庭的需求,但在儿科肿瘤学中很少有科学评估的心理社会干预措施。基于家庭的心理社会干预“家庭谈话干预”(FTI)在其他护理环境中显示出了有希望的结果,因此在儿科肿瘤学中进行了试点测试。在这项研究中,我们从患病儿童的角度考察了参与FTI的可行性和潜在影响。方法:这项试点研究涉及26个参与FTI的儿科肿瘤学家庭。这篇论文的重点是那些回答调查(n = 19) 和/或参加访谈(n = 11) FTI结束时。数据分析采用描述性统计和专题分析。结果:对于大多数患病儿童来说,FTI来得正是时候,包括合理数量的会议,并且会议的时间长度是合适的。孩子们感到被干预主义者倾听和理解,几乎所有的孩子都报告说FTI在某种程度上帮助了他们。儿童的看法表明,快速道行动改善了家庭内部的沟通,加强了家庭关系。孩子们报告说,父母和他们的兄弟姐妹在参与后似乎感觉好多了,变得更加理解。讨论:这项试点研究的结果表明,从患病儿童的角度来看,全面研究可能是有价值的,因为据报道FTI是可行的,并且具有积极影响。研究结果表明,FTI让家庭有机会就疾病展开沟通,调整行为,加强家庭关系。试验注册:ClinicalTrials.gov标识符NCT03650530。
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The Family Talk Intervention in Pediatric Oncology: Ill Children’s Descriptions of Feasibility and Potential Effects
Background: There are few scientifically evaluated psychosocial interventions in pediatric oncology, despite the needs for families. The family-based psychosocial intervention “The Family Talk Intervention” (FTI) has shown promising results in other care contexts and was therefore pilot-tested in pediatric oncology. In this study, we examined the experiences of participating in FTI from ill children's perspectives regarding feasibility and potential effects. Methods: This pilot study involved 26 families in pediatric oncology that had participated in FTI. The paper is focused on those ill children who answered surveys (n = 19) and/or participated in interviews (n = 11) when FTI had ended. Data were analyzed with descriptive statistics and thematic analysis. Results: For most ill children, FTI came at the right time, included a reasonable number of meetings, and the length of the meetings was appropriate. The children felt listened to and understood by the interventionists and almost all children reported that FTI had helped them in some way. The children's perceptions indicated that FTI improved communication within the family and strengthened family relations. Children reported that the parents and their siblings seemed to feel better after participation and became more understanding. Discussion: The findings of this pilot study indicated that a full-scale study could be valuable from the ill children's perspective, as FTI was reported as feasible and had positive effects. The findings showed that FTI gave families an opportunity to open up communication about the illness, adjust their behaviors, and strengthen family relationships. Trial registration: ClinicalTrials.gov Identifier NCT03650530.
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