{"title":"冠状病毒病（新冠肺炎）流行期神经肌肉疾病儿童的预防和管理建议","authors":"H. Xiong, Yuwu Jiang, Junfen Fu","doi":"10.3760/CMA.J.ISSN.2095-428X.2020.02.008","DOIUrl":null,"url":null,"abstract":"我国新型冠状病毒肺炎(Corona Virus Disease，COVID-19)疫情到目前为止还在持续。现有流行病学显示人群对新型冠状病毒(2019 novel coronavirus，2019-nCoV)普遍易感，有基础疾病或60岁以上患者是COVID-19重症病例的高危人群。对于罕见病，尤其是对呼吸道感染易感而且一旦患病极易加重、甚至危及生命的神经肌肉病患儿，如何加强防护和进行居家康复，目前需要更多的关注。因此，中华医学会儿科学分会内分泌遗传代谢学组、中华医学会儿科学分会神经学组、中华医学会儿科学分会康复学组和《中华实用儿科临床杂志》编辑委员会以婴幼儿最常见的神经肌肉病-脊髓性肌萎缩症(spinal muscular atrophy，SMA)为例，根据国家卫生健康委员会发布的相关疾病诊治方案和SMA多学科管理专家共识，结合儿童COVID-19的临床特点，制定了以SMA为代表的神经肌肉病患儿COVID-19的防控建议以及疫情期间康复训练和用药指导的专家建议，以指导合并COVID-19的神经肌肉病患儿的诊治及其居家管理、康复。","PeriodicalId":9843,"journal":{"name":"中华实用儿科临床杂志","volume":"35 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2020-02-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Recommendations for prevention and management of children with neuromuscular disorders during the epidemic period of corona virus disease (COVID-19)\",\"authors\":\"H. Xiong, Yuwu Jiang, Junfen Fu\",\"doi\":\"10.3760/CMA.J.ISSN.2095-428X.2020.02.008\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"我国新型冠状病毒肺炎(Corona Virus Disease，COVID-19)疫情到目前为止还在持续。现有流行病学显示人群对新型冠状病毒(2019 novel coronavirus，2019-nCoV)普遍易感，有基础疾病或60岁以上患者是COVID-19重症病例的高危人群。对于罕见病，尤其是对呼吸道感染易感而且一旦患病极易加重、甚至危及生命的神经肌肉病患儿，如何加强防护和进行居家康复，目前需要更多的关注。因此，中华医学会儿科学分会内分泌遗传代谢学组、中华医学会儿科学分会神经学组、中华医学会儿科学分会康复学组和《中华实用儿科临床杂志》编辑委员会以婴幼儿最常见的神经肌肉病-脊髓性肌萎缩症(spinal muscular atrophy，SMA)为例，根据国家卫生健康委员会发布的相关疾病诊治方案和SMA多学科管理专家共识，结合儿童COVID-19的临床特点，制定了以SMA为代表的神经肌肉病患儿COVID-19的防控建议以及疫情期间康复训练和用药指导的专家建议，以指导合并COVID-19的神经肌肉病患儿的诊治及其居家管理、康复。\",\"PeriodicalId\":9843,\"journal\":{\"name\":\"中华实用儿科临床杂志\",\"volume\":\"35 1\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2020-02-25\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"中华实用儿科临床杂志\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.3760/CMA.J.ISSN.2095-428X.2020.02.008\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"Medicine\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"中华实用儿科临床杂志","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.3760/CMA.J.ISSN.2095-428X.2020.02.008","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"Medicine","Score":null,"Total":0}
引用次数: 0
摘要
The epidemic situation of novel coronavirus Disease (COVID-19) in China has continued so far. Current epidemiology shows that people are generally susceptible to novel coronavirus (2019 new coronavirus, 2019 nCoV), and patients with basic diseases or over 60 years old are high-risk groups for severe cases of COVID-19. For rare diseases, especially children with neuromuscular diseases who are susceptible to respiratory infections and can easily worsen or even endanger their lives, more attention needs to be paid to strengthening protection and home rehabilitation. Therefore, the Endocrine Genetics and Metabolism Group of the Chinese Medical Pediatrics Branch, the Neurology Group of the Chinese Medical Pediatrics Branch, the Rehabilitation Group of the Chinese Medical Pediatrics Branch, and the Editorial Committee of the Chinese Journal of Practical Pediatrics take the most common neuromuscular disease in infants and young children - spinal muscular atrophy (SMA) as an example, According to the relevant disease diagnosis and treatment plans released by the National Health Commission and the consensus of SMA multidisciplinary management experts, combined with the clinical characteristics of COVID-19 in children, prevention and control recommendations for neuromuscular disease children, represented by SMA, as well as expert recommendations for rehabilitation training and medication guidance during the epidemic, have been formulated to guide the diagnosis and treatment, home management, and rehabilitation of neuromuscular disease children with combined COVID-19.
中华实用儿科临床杂志Medicine-Pediatrics, Perinatology and Child Health
CiteScore
0.60
自引率
0.00%
发文量
14243
期刊介绍：
Chinese Journal of Applied Clinical Pediatrics ( semi-monthly ) is a core journal of paediatrics under the supervision of China Association for Science and Technology, sponsored by Chinese Medical Association and undertaken by Xinxiang Medical College. Founded in 1986, it is openly circulated both at home and abroad. The journal has several columns, such as Expert Forum, Experimental Research and Paediatric Surgery, which are mainly for paediatric medical workers and medical researchers in hospitals. Its purpose is to reflect the new theories and technologies in paediatric medicine and scientific research at home and abroad, and to promote academic exchanges.
Chinese Journal of Applied Clinical Pediatrics is a source journal of China Science Citation Database (CSCD), a core journal of Peking University, a source journal of Chinese science and technology paper statistics (China Science and Technology Core Journals), a core academic journal of RCCSE, a high-quality scientific and technical journal of China, a high-quality scientific and technical journal of China Association for Science and Technology, and a high-quality scientific and technical journal of China Biomedical Science and Technology Association. We have been published in China Biomedical Literature Database (SinoMed), China Knowledge Network, Wanfang Data Knowledge Service Platform, China Academic Journal Abstracts, Scopus Database, Chemical Abstracts (USA), Japan Science and Technology Agency (JSTA) Database, Copernicus Abstracts (Poland), Abstracts of the Centre for Agricultural and Biological Sciences (CABS) of the United Kingdom, Cambridge Scientific Abstracts ProQuest Database, WHO Medical Journal of the Western Pacific Region (WMPR), and WHO Medical Journal of the Western Pacific Region (WMPR) of the United States. We have been included in dozens of authoritative databases at home and abroad, such as WHO Western Pacific Region Index of Medicine (WPRIM), Ullrich's Guide to Periodicals, and so on.
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