B. Ragni, S. Cappelletti, S. D. Stasio, I. Tondo, N. Specchio, F. Vigevano, S. Gentile
{"title":"癫痫对青少年的影响:焦点小组定量研究","authors":"B. Ragni, S. Cappelletti, S. D. Stasio, I. Tondo, N. Specchio, F. Vigevano, S. Gentile","doi":"10.6092/2282-1619/MJCP-2428","DOIUrl":null,"url":null,"abstract":"Adolescents with epilepsy live with a chronic illness that influences their relationships with peers and the development of their autonomy. Questions have been raised as to whether quantitative research approaches can adequately capture patients' experiences of living with epilepsy. By comparison, qualitative research methodologies support a more in-depth exploration of patients' personal experiences, enabling epilepsy researchers to obtain meaningful and valuable insights into patients' unique point of view. Participants in the present study were eight adolescents with epilepsy (five females, three males) aged between 15 and 20 years. The data were collected via a standard focus group procedure and self-report measures (Patient Health Questionnaire for Depression; PHQ-9 ; Generalized Anxiety Disorder Scale; GAD-7 and Quality of Life Inventory for Adolescents; QOLIE-AD-48 ) . Qualitative analysis of the focus group data yielded four key categories defining the psychosocial impact of epilepsy on adolescence: \"Peer relationships and acceptance\", \"Autonomy\", \"School,\" and \"Future\". These outcomes suggest that epilepsy research may be significantly enhanced by the use of mixed-method approaches: adopting qualitative techniques such as focus group discussions to explore epileptic adolescents' thoughts and feelings and the psychosocial impact of epilepsy during adolescence, can inform clinical practice and promote the empowerment and quality of life of teenagers with epilepsy.","PeriodicalId":18428,"journal":{"name":"Mediterranean Journal of Clinical Psychology","volume":null,"pages":null},"PeriodicalIF":1.8000,"publicationDate":"2020-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"3","resultStr":"{\"title\":\"The impact of epilepsy on adolescence: a quali-quantitative investigation using focus group\",\"authors\":\"B. Ragni, S. Cappelletti, S. D. Stasio, I. Tondo, N. Specchio, F. Vigevano, S. Gentile\",\"doi\":\"10.6092/2282-1619/MJCP-2428\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Adolescents with epilepsy live with a chronic illness that influences their relationships with peers and the development of their autonomy. Questions have been raised as to whether quantitative research approaches can adequately capture patients' experiences of living with epilepsy. By comparison, qualitative research methodologies support a more in-depth exploration of patients' personal experiences, enabling epilepsy researchers to obtain meaningful and valuable insights into patients' unique point of view. Participants in the present study were eight adolescents with epilepsy (five females, three males) aged between 15 and 20 years. The data were collected via a standard focus group procedure and self-report measures (Patient Health Questionnaire for Depression; PHQ-9 ; Generalized Anxiety Disorder Scale; GAD-7 and Quality of Life Inventory for Adolescents; QOLIE-AD-48 ) . Qualitative analysis of the focus group data yielded four key categories defining the psychosocial impact of epilepsy on adolescence: \\\"Peer relationships and acceptance\\\", \\\"Autonomy\\\", \\\"School,\\\" and \\\"Future\\\". These outcomes suggest that epilepsy research may be significantly enhanced by the use of mixed-method approaches: adopting qualitative techniques such as focus group discussions to explore epileptic adolescents' thoughts and feelings and the psychosocial impact of epilepsy during adolescence, can inform clinical practice and promote the empowerment and quality of life of teenagers with epilepsy.\",\"PeriodicalId\":18428,\"journal\":{\"name\":\"Mediterranean Journal of Clinical Psychology\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.8000,\"publicationDate\":\"2020-08-13\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"3\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Mediterranean Journal of Clinical Psychology\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.6092/2282-1619/MJCP-2428\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"PSYCHOLOGY, CLINICAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Mediterranean Journal of Clinical Psychology","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.6092/2282-1619/MJCP-2428","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PSYCHOLOGY, CLINICAL","Score":null,"Total":0}
The impact of epilepsy on adolescence: a quali-quantitative investigation using focus group
Adolescents with epilepsy live with a chronic illness that influences their relationships with peers and the development of their autonomy. Questions have been raised as to whether quantitative research approaches can adequately capture patients' experiences of living with epilepsy. By comparison, qualitative research methodologies support a more in-depth exploration of patients' personal experiences, enabling epilepsy researchers to obtain meaningful and valuable insights into patients' unique point of view. Participants in the present study were eight adolescents with epilepsy (five females, three males) aged between 15 and 20 years. The data were collected via a standard focus group procedure and self-report measures (Patient Health Questionnaire for Depression; PHQ-9 ; Generalized Anxiety Disorder Scale; GAD-7 and Quality of Life Inventory for Adolescents; QOLIE-AD-48 ) . Qualitative analysis of the focus group data yielded four key categories defining the psychosocial impact of epilepsy on adolescence: "Peer relationships and acceptance", "Autonomy", "School," and "Future". These outcomes suggest that epilepsy research may be significantly enhanced by the use of mixed-method approaches: adopting qualitative techniques such as focus group discussions to explore epileptic adolescents' thoughts and feelings and the psychosocial impact of epilepsy during adolescence, can inform clinical practice and promote the empowerment and quality of life of teenagers with epilepsy.
期刊介绍:
The MJCP is an Open Access Peer-Reviewed International Journal in Clinical Psychology. MJCP accepts research related to innovative and important areas of clinical research: 1. Clinical studies related to Clinical Psychology, 2. Psychopathology and Psychotherapy; 3. Basic studies pertaining to clinical psychology field as experimental psychology, psychoneuroendocrinology and psychoanalysis; 4. Growing application of clinical techniques in clinical psychology, psychology of health, clinical approaches in projective methods; 5. Forensic psychology in clinical research; 6. Psychology of art and religion; 7. Advanced in basic and clinical research methodology including qualitative and quantitative research and new research findings.