公共物理治疗保健服务对多发性硬化症患者的认识和利用:一项保健服务审计

Q1 Nursing International journal of MS care Pub Date : 2024-01-01 Epub Date: 2024-01-05 DOI:10.7224/1537-2073.2022-057
Saduni Jasin-Pathiranage, Lisa B Grech, Charlotte Scroggie, Phoebe Sansom
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引用次数: 0

摘要

为了最大限度地提高多发性硬化症患者的功能和健康,建议在诊断时和整个病程中进行理疗咨询。我们想确定通过澳大利亚一家大型大都市医院管理的多发性硬化症患者是否根据循证建议将理疗输入作为其多发性痴呆症管理的一部分,并确定患者自我报告的理疗要求,包括症状管理、信息需求和服务提供偏好。向597名MS门诊患者发送了调查,160人做出了回应。使用描述性方法对数据进行分析,得出频率和百分比。该调查包括16个问题和2个与社会人口统计(年龄和邮政编码)相关的可选问题。在160名受访者中,142人完成了全部14个非选择性问题。三分之一的参与者(n=53)知道医院MS诊所的物理治疗服务,21.3%(n=34)的人表示他们已经获得了这些服务。相反,40.1%的受访者(n=61)表示曾咨询过私人理疗师。总的来说,52%的受访者表示看过理疗师。有明显的偏好(94.7%;n=144)获得MS诊所理疗服务。82.2%的受访者(n=125)报告至少存在1个目前与MS相关的物理治疗问题。访问MS相关信息的主要方式是通过专业MS网站(57.6%)和移动应用程序(55.6%)。理疗需求未得到满足,许多参与者可能因不知情而放弃了服务。为了最大限度地提高多发性硬化症患者的功能和幸福感,需要在诊断时提高对理疗的认识和接受程度。
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Awareness and Utilization of Public Physiotherapy Health Care Services to Support People With Multiple Sclerosis: A Health Care Service Audit.

Background: To maximize functioning and well-being in people with multiple sclerosis (MS), physiotherapy consultation is recommended at the point of diagnosis and throughout the disease course. We wanted to determine whether patients with MS being managed through a large metropolitan hospital in Australia accessed physiotherapy input as part of their MS management consistent with evidence-based recommendations and to identify patients' self-reported physiotherapy requirements, including symptom management, information needs, and service delivery preferences.

Methods: Surveys were sent to 597 MS clinic patients, and 160 responded. Data were analyzed using descriptive methods to derive frequencies and percentages. The survey consisted of 16 questions plus 2 optional questions related to sociodemographics (age and postcode).

Results: Of 160 respondents, 142 completed all 14 nonoptional questions. One-third of participants (n = 53) were aware of the hospital MS clinic physiotherapy services, with 21.3% (n = 34) saying that they had accessed these services. Conversely, 40.1% of respondents (n = 61) reported having consulted a private physiotherapist. Combined, 52% of respondents reported seeing a physiotherapist. There was a clear preference (94.7%; n = 144) for access to the MS clinic physiotherapy service. The presence of at least 1 current MS-related physiotherapy problem was reported by 82.2 2% of respondents (n = 125). The top ways to access MS-related information were via a specialist MS website (57.6%) and a mobile app (55.6%).

Conclusions: There is an unmet need for physiotherapy, and many participants may have foregone services due to unawareness. Improved awareness and uptake of physiotherapy at the point of diagnosis is needed to maximize functioning and well-being in people with MS.

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来源期刊
International journal of MS care
International journal of MS care Nursing-Advanced and Specialized Nursing
CiteScore
3.00
自引率
0.00%
发文量
40
期刊最新文献
Impact of Fingolimod Discontinuation Strategy on Recurrence of Disease Activity in Individuals With Multiple Sclerosis. Expanding the Connection Between Cognition and Illness Intrusiveness in Multiple Sclerosis. Cognitive Function in Frail Older Adults With Multiple Sclerosis: An Exploratory Study Using Secondary Data Analysis. Exploring the Complexity of Falls in People With Multiple Sclerosis: A Qualitative Study. Reasons for Hospital Admission in Individuals With Multiple Sclerosis.
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