参与式研究中的“合作生产”从参与者的角度来看意味着什么:一种协作的自我民族志探究

L. Phillips, A. Larsen, Lotte Mengel
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引用次数: 2

摘要

在参与式健康研究中,有疾病生活经历的人作为共同研究人员与学术研究人员一起参与知识的共同生产。一个核心思想是通过为共同研究者的经验化、具体化知识创造空间,使知识生产民主化。参与式研究文献包括反思性分析,探讨参与式研究中共同生产的复杂性。然而,尽管有民主的理想,这些分析几乎总是由学术研究人员独自撰写的。在这篇文章中,两位有帕金森病生活经验的联合研究人员和一位学术研究人员从他们自己的角度,对参与式研究中的“共同生产”对参与者意味着什么进行了合作的民族志调查。在这样做的过程中,这篇文章提出并说明了合作民族志的一种独特形式,作为一种参与性方法,使联合研究人员和学术研究人员能够通过个人叙事的对话,共同调查、写作和发表关于共同制作的内容。它还介绍了调查产生的关于联合制作对参与者意味着什么的具体内部见解。
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What “Coproduction” in Participatory Research Means From Participants’ Perspectives: A Collaborative Autoethnographic Inquiry
In participatory health research, people with lived experience of illness participate as co-researchers in the co-production of knowledge along with academic researchers. A central idea is to democratize knowledge production by creating space for co-researchers’ experiential, embodied knowledge. The participatory research literature includes reflexive analyses exploring the complexities of co-production in participatory research. However, despite the democratic ideals, these analyses are almost always written by academic researchers alone. In this article, two co-researchers with lived experience of Parkinson’s disease and an academic researcher carry out a collaborative autoethnographic inquiry into what “co-production” in participatory research means for participants from their own perspectives. In so doing, the article presents and illustrates a distinctive format for collaborative autoethnography as a participatory method that enables co-researchers and academic researchers to investigate, write, and publish about co-production together through dialogue across personal narratives. It also presents the specific insider insights the inquiry generated into what co-production means for participants.
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