为患有1型糖尿病的青春期女孩制定基于认知失调的饮食障碍预防计划

Paige J. Trojanowski, R. Mehlenbeck, Sarah F. Fischer
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引用次数: 1

摘要

摘要患有1型糖尿病(T1D)的少女患饮食失调(ED)的风险很高,这是一种破坏治疗依从性并导致严重医疗并发症的合并症。尽管存在这些担忧,但目前还没有针对T1D特定风险因素的青少年预防计划。本研究旨在为患有T1D的少女改编现有的、经验支持的基于认知失调的ED预防计划(身体项目)。患有T1D的年轻女性、父母和多学科医疗专业人员参加了半结构化的焦点小组和个人访谈,重点是了解影响身体形象发展和饮食的T1D特定因素,并收集修改程序以解决T1D特定因子的建议。确定了与复杂因素相关的多个主题:糖尿病刻板印象和错误信息、疾病不被接受、T1D管理需求、青少年医生关系和家庭因素。与保护因素相关的三个主题也出现了:疾病接受、经历的验证和正常化,以及家庭因素。还收集了利益相关者对项目结构的反馈。除了研究结果如何扩展目前T1D年轻女性ED发展的理论模型外,还详细描述了改编后的手册方案。经过调整的ED预防计划,身体项目(T1D风格),除了最初的计划侧重于挑战和抵抗社会文化外表压力外,还侧重于促进疾病接受、鼓励自我肯定、教授有效的沟通技能和加强社会支持。
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Adapting a Cognitive Dissonance-based Eating Disorders Prevention Program for Adolescent Girls with Type 1 Diabetes
ABSTRACT Adolescent girls with Type 1 diabetes (T1D) are at high risk for developing eating disorders (EDs), a comorbidity that undermines treatment adherence and contributes to serious medical complications. Despite these concerns, no teen prevention programs exist that address risk factors specific to T1D. This study aimed to adapt an existing, empirically supported cognitive dissonance-based ED prevention program (Body Project) for teen girls with T1D. Young women with T1D, parents, and multidisciplinary medical professionals participated in semi-structured focus groups and individual interviews centered on understanding T1D-specific factors that influence body image development and eating and gathering suggestions for modifying the program to address T1D-specific factors. Multiple themes were identified related to complicating factors: diabetes stereotypes and misinformation, illness non-acceptance, demands of T1D management, adolescent-doctor relations, and family factors. Three themes related to protective factors also emerged: illness acceptance, validation and normalization of experiences, and family factors. Stakeholder feedback on program structure was also gathered. The adapted manual protocol is described in detail in addition to how findings extend current theoretical models of ED development in young women with T1D. The adapted ED prevention program, Body Project (T1D Style), centers on promoting illness acceptance, encouraging self-affirmation, teaching effective communication skills, and enhancing social support in addition to the original program’s focus on challenging and resisting sociocultural appearance pressures.
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