描述未被充分代表的晚期癌症妇女的自我倡导。

IF 1.6 4区 医学 Q2 NURSING Oncology nursing forum Pub Date : 2023-10-19 DOI:10.1188/23.ONF.725-734
Sarah Bell, Rachel Bergeron, Patricia Jo Murray, Shena Gazaway, Teresa Hagan Thomas
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引用次数: 0

摘要

目的:描述患有晚期乳腺癌或妇科癌症的代表性不足群体的妇女的自述经历。参与者和背景:为了有资格参加研究,参与者必须自我识别为易受感染者,即被认为有癌症不良结果风险且在临床研究中代表性不足的群体成员。方法:这项描述性、纵向、定性研究包括对晚期乳腺癌或妇科癌症诊断后三个月内的女性进行一对一访谈。调查结果:10名参与者完成了25次访谈。参与者的平均年龄为60.2岁(范围=38-75岁)。出现了三个主要主题:(a)畅所欲言,(b)与医疗团队互动,以及(c)依赖他人的支持。对护理的影响:来自代表性不足群体的晚期癌症女性以独特的方式自我表达,随着时间的推移,学习如何沟通自己的需求和管理医疗团队的重要性。未来的研究应将这些发现纳入量身定制的自我宣传干预措施中。
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Describing Self-Advocacy in Underrepresented Women With Advanced Cancer.

Purpose: To describe the self-advocacy experiences of women from underrepresented groups who have advanced breast or gynecologic cancer.

Participants & setting: To be eligible for the study, participants had to self-identify as vulnerable, which was defined as a member of a group considered at risk for poor cancer outcomes and underrepresented in clinical research.

Methodologic approach: This descriptive, longitudinal, qualitative study consisted of one-on-one interviews of women within three months of an advanced breast or gynecologic cancer diagnosis.

Findings: 10 participants completed 25 interviews. The average age of participants was 60.2 years (range = 38-75 years). Three major themes emerged: (a) speaking up and speaking out, (b) interacting with the healthcare team, and (c) relying on support from others.

Implications for nursing: Women with advanced cancer who are from underrepresented groups self-advocated in unique ways, learning over time the importance of how to communicate their needs and manage their healthcare team. Future research should incorporate these findings into tailored self-advocacy interventions.

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来源期刊
Oncology nursing forum
Oncology nursing forum 医学-护理
CiteScore
3.20
自引率
0.00%
发文量
76
审稿时长
>12 weeks
期刊介绍: The mission of the Oncology Nursing Forum, an official publication of ONS, is to Convey research information related to practice, technology, education, and leadership. Disseminate oncology nursing research and evidence-based practice to enhance transdisciplinary quality cancer care. Stimulate discussion of critical issues relevant to oncology nursing.
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