土耳其脊髓灰质炎幸存者的健康相关生活质量:脊髓灰质炎后对功能状态、疼痛严重程度、疲劳以及社交和情感功能方面的健康相关生活质量的影响

Yesim Garip , Filiz Eser , Hatice Bodur , Bedriye Baskan , Filiz Sivas , Ozlem Yilmaz
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引用次数: 16

摘要

目的探讨脊髓灰质炎后综合征对幸存者生活质量的影响。方法选取40例脊髓灰质炎幸存者作为研究对象。21例符合Halstead脊髓灰质炎后综合征标准的患者参加脊髓灰质炎后综合征组。其余19例为非脊髓灰质炎后综合征组。对照组由40名健康受试者组成。生活质量采用诺丁汉健康量表,抑郁采用贝克抑郁量表,疲劳采用疲劳症状量表。等长肌力采用手工肌力测试法测定。结果脊髓灰质炎后综合征组手部肌肉测试总分为26.19±13.24分(中位数:29),非脊髓灰质炎后综合征组手部肌肉测试总分为30.08±8.9分(中位数:32)。非脊髓灰质炎后综合征组手部肌肉测试总分显著高于脊髓灰质炎后综合征组。与没有脊髓灰质炎后综合征的患者和对照组相比,脊髓灰质炎后综合征患者报告的疲劳程度明显更高,在身体活动能力、疼痛和精力方面的生活质量下降。在脊髓灰质炎后综合症、非脊髓灰质炎后综合症和对照组之间,在社交和情感功能以及睡眠质量方面没有统计学上的显著差异。各组间贝克抑郁量表得分也无统计学差异。结论脊髓灰质炎综合征在功能状态、疼痛程度和精力方面对生活质量有负面影响。脊髓灰质炎后综合征患者的识别、早期识别和康复可能会改善其生活质量。
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Health related quality of life in Turkish polio survivors: impact of post-polio on the health related quality of life in terms of functional status, severity of pain, fatigue, and social, and emotional functioning

Objective

To determine the impact of postpolio-syndrome on quality of life in polio survivors.

Methods

Forty polio survivors were included in the study. Twenty-one patients fulfilling the Halstead's postpolio-syndrome criteria participated in postpolio-syndrome group. The remaining nineteen patients formed non-postpolio-syndrome group. Control group was composed of forty healthy subjects. Quality of life was evaluated by Nottingham Health Profile, depression by Beck Depression Scale and fatigue by Fatigue Symptom Inventory. Isometric muscle strength was measured by manual muscle testing.

Results

Total manual muscle testing score was 26.19 ± 13.24 (median: 29) in postpolio-syndrome group and 30.08 ± 8.9 (median: 32) in non-postpolio-syndrome group. Total manual muscle testing scores of non-postpolio-syndrome group were significantly higher than that of postpolio-syndrome group. Patients with postpolio-syndrome reported significantly higher levels of fatigue and reduced quality of life in terms of physical mobility, pain and energy when compared with patients without postpolio-syndrome and control group. It was not reported a statistically significant difference in social and emotional functioning and sleep quality between postpolio-syndrome, non-postpolio-syndrome and control groups. Also it was not found any statistically significant difference in Beck Depression Scale scores among the groups.

Conclusions

Postpolio-syndrome has a negative impact on quality of life in terms of functional status, severity of pain and energy. The identification, early recognition and rehabilitation of postpolio-syndrome patients may result in an improvement in their quality of life.

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