Cristina Lasmarías, Candela Calle Rodríguez, Anna M. Esteve Gómez, Jordi Navarro
{"title":"癌症专题研究所肿瘤患者的共享护理计划:回顾性描述性研究","authors":"Cristina Lasmarías, Candela Calle Rodríguez, Anna M. Esteve Gómez, Jordi Navarro","doi":"10.20986/medpal.2021.1258/2021","DOIUrl":null,"url":null,"abstract":"Introduction: Advance care planning (ACP) encourages people to express wishes, preferences and concerns in order to facilitate a shared care process between patient, family and professionals. This is especially relevant in cancer context. Materials and methods: A cross-sectional study was carried out to analyze the ACP process practices of the professionals through the clinical records of the last 3 months of life of a sample of deceased patients in one month in a monographic cancer hospital. Sociodemographic variables, diagnosis, level of therapeutic intensity, cognitive status and ACP variables were defined: preferences, concerns, preference for place of care and place of death, choice of surrogate and advance directive document (ADC) existence. Results: N░=░54; 61.1░% men; median age: 64.5 years. Main cancer disease: respiratory (22.2░%); 79.6░% expressed themselves. The ACP variables were preferences 74,1░% (n░=░40); concerns 75,9░% (n░=░41); surrogate 7.4░% (n░=░4); place of care: 27.8░% (n░=░ 15); place of death: 16.7░% (n░=░ 9). None had an ADC Preferences and concerns records are mainly carried out by the palliative cares teams. The level of therapeutic intensity in the preferences / concerns record was 3A. Concerns were associated with self-expression of the patient (p░<░0.001). Conclusions: Registration of ACP dimensions are poor and occurs mainly in end-of-life context. Variables such as the representative figure or the ADCs are scarce. Early integration of ACP in clinical practice would facilitate decision-making with cancer patients and would help to define the care process according to their wishes and preferences.","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"La Planificación Compartida de la Atención en personas con enfermedad oncológica en un instituto monográfico de cáncer: estudio descriptivo retrospectivo\",\"authors\":\"Cristina Lasmarías, Candela Calle Rodríguez, Anna M. Esteve Gómez, Jordi Navarro\",\"doi\":\"10.20986/medpal.2021.1258/2021\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Introduction: Advance care planning (ACP) encourages people to express wishes, preferences and concerns in order to facilitate a shared care process between patient, family and professionals. This is especially relevant in cancer context. Materials and methods: A cross-sectional study was carried out to analyze the ACP process practices of the professionals through the clinical records of the last 3 months of life of a sample of deceased patients in one month in a monographic cancer hospital. Sociodemographic variables, diagnosis, level of therapeutic intensity, cognitive status and ACP variables were defined: preferences, concerns, preference for place of care and place of death, choice of surrogate and advance directive document (ADC) existence. Results: N░=░54; 61.1░% men; median age: 64.5 years. Main cancer disease: respiratory (22.2░%); 79.6░% expressed themselves. The ACP variables were preferences 74,1░% (n░=░40); concerns 75,9░% (n░=░41); surrogate 7.4░% (n░=░4); place of care: 27.8░% (n░=░ 15); place of death: 16.7░% (n░=░ 9). None had an ADC Preferences and concerns records are mainly carried out by the palliative cares teams. The level of therapeutic intensity in the preferences / concerns record was 3A. Concerns were associated with self-expression of the patient (p░<░0.001). Conclusions: Registration of ACP dimensions are poor and occurs mainly in end-of-life context. Variables such as the representative figure or the ADCs are scarce. Early integration of ACP in clinical practice would facilitate decision-making with cancer patients and would help to define the care process according to their wishes and preferences.\",\"PeriodicalId\":49831,\"journal\":{\"name\":\"Medicina Paliativa\",\"volume\":\"1 1\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2021-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Medicina Paliativa\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.20986/medpal.2021.1258/2021\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medicina Paliativa","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.20986/medpal.2021.1258/2021","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"Nursing","Score":null,"Total":0}
La Planificación Compartida de la Atención en personas con enfermedad oncológica en un instituto monográfico de cáncer: estudio descriptivo retrospectivo
Introduction: Advance care planning (ACP) encourages people to express wishes, preferences and concerns in order to facilitate a shared care process between patient, family and professionals. This is especially relevant in cancer context. Materials and methods: A cross-sectional study was carried out to analyze the ACP process practices of the professionals through the clinical records of the last 3 months of life of a sample of deceased patients in one month in a monographic cancer hospital. Sociodemographic variables, diagnosis, level of therapeutic intensity, cognitive status and ACP variables were defined: preferences, concerns, preference for place of care and place of death, choice of surrogate and advance directive document (ADC) existence. Results: N░=░54; 61.1░% men; median age: 64.5 years. Main cancer disease: respiratory (22.2░%); 79.6░% expressed themselves. The ACP variables were preferences 74,1░% (n░=░40); concerns 75,9░% (n░=░41); surrogate 7.4░% (n░=░4); place of care: 27.8░% (n░=░ 15); place of death: 16.7░% (n░=░ 9). None had an ADC Preferences and concerns records are mainly carried out by the palliative cares teams. The level of therapeutic intensity in the preferences / concerns record was 3A. Concerns were associated with self-expression of the patient (p░<░0.001). Conclusions: Registration of ACP dimensions are poor and occurs mainly in end-of-life context. Variables such as the representative figure or the ADCs are scarce. Early integration of ACP in clinical practice would facilitate decision-making with cancer patients and would help to define the care process according to their wishes and preferences.
期刊介绍:
Medicina Paliativa, publicada desde 1994, es la publicación oficial de la Sociedad Española de Cuidados Paliativos (SECPAL).
Medicina Paliativa es una revista trimestral de revisión por pares y sirve a un público interdisciplinario de profesionales, proporcionando un foro para la publicación de manuscritos en español de todas las disciplinas asociadas a los cuidados paliativos y en especial los de carácter multidisciplinar.