成人脊柱裂的医学康复

A. Fisher
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引用次数: 0

摘要

由于医学研究的进步,患有脊柱裂(SB)的成年人现在可以比以前活得更长。由于预期寿命的延长,保健必须延长到成熟阶段。1975年以前,脊髓脊膜膨出的新生儿死亡对存活率有重大影响。目前,预计至少75%-85%的新生儿SB会活到成年。然而,根据目前的统计数据,不可能正确预测SB患者的预期寿命。不断扩大的成年SB人口引发了一系列旨在阐明影响该群体的医疗和康复问题的研究项目。其中包括神经、神经外科、认知、社会心理、肾脏/泌尿、肠道管理、运动、肌肉骨骼/矫形、性功能、皮肤和其他领域。肾脏、心脏和肺部的并发症都已被确定为常见的死亡原因。必须优化这些继发性健康障碍的医疗和康复护理,以降低SB成人的死亡率、发病率和损伤,并提高生活质量。
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Medical Rehabilitation of the Adult with Spine Bifida
Adults with Spina Bifida (SB) can now live longer than ever before thanks to advances in medical research. Because of the increase in life expectancy, health care must be extended into maturity. The death of newborns with myelomeningocele had a substantial impact on survival rates prior to 1975. At least 75%–85% of children born with SB are projected to live to adulthood today. However, based on the current statistics, it is impossible to correctly predict the life expectancy of persons with SB. The expanding adult SB population has sparked a slew of research projects aimed at elucidating medical and rehabilitative concerns that affect this group. Neurological, neurosurgical, cognitive, psychosocial, renal/urological, bowel management, mobility, musculoskeletal/orthopaedic, sexual function, skin, and other domains are among them. Complications of the kidneys, heart, and lungs have all been identified as common causes of mortality. The medical and rehabilitation care of these secondary health disorders must be optimised in order to reduce mortality, morbidity, and impairment in adults with SB and improve quality of life.
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