{"title":"儿童癌症幸存者独立的父母参与过程:从青春期到成年期,注重平衡健康管理和社会生活。","authors":"Kyoko Miyagishima, Kazuko Ichie, Kimiyoshi Sakaguchi, Yuka Kato","doi":"10.1111/jjns.12572","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Aim</h3>\n \n <p>This study aimed to elucidate the parental involvement process regarding childhood cancer survivors' (CCSs') independence while balancing their health management and social lives from adolescence to adulthood to obtain suggestions for long-term support for CCSs and their parents.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>Semi-structured interviews were conducted with 19 parents of Japanese CCSs aged 16–25 years. The data were then qualitatively analyzed using the modified grounded theory approach.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Three “categories” and 20 “concepts” were generated. The connections among these categories and concepts revealed the parental involvement process regarding CCSs' independence while balancing their health management and social lives. The first phase in this process is to “support careful behaviors,” mainly during CCSs' treatment in the outpatient clinic or shortly after discharge. As CCSs recover after cancer treatment, parents “watch over, but feel conflicted,” with “conflicts between protecting their sons/daughters and giving them independence.” Then, parents reach a phase in which they “acknowledge and entrust,” which includes “acknowledgment of development and efforts” of their sons/daughters, and develop an “attitude to entrust medical checkups to their sons/daughters, along with their preparation.” The influencing factors of the three phases include “ongoing anxieties about the late effects of therapy and recurrence” and an “expectation for their sons/daughters to acquire abilities for living independently.”</p>\n </section>\n \n <section>\n \n <h3> Conclusions</h3>\n \n <p>These findings suggest that nurses need to accept parents' feelings and thoughts regarding conflicts with CCSs, recognition of CCSs' development, and values. These processes may help nurses and health-care professionals support parents from a comprehensive perspective.</p>\n </section>\n </div>","PeriodicalId":50265,"journal":{"name":"Japan Journal of Nursing Science","volume":null,"pages":null},"PeriodicalIF":1.7000,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The parental involvement process regarding childhood cancer survivors becoming independent: Focus on balancing health management and social lives from adolescence to adulthood\",\"authors\":\"Kyoko Miyagishima, Kazuko Ichie, Kimiyoshi Sakaguchi, Yuka Kato\",\"doi\":\"10.1111/jjns.12572\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Aim</h3>\\n \\n <p>This study aimed to elucidate the parental involvement process regarding childhood cancer survivors' (CCSs') independence while balancing their health management and social lives from adolescence to adulthood to obtain suggestions for long-term support for CCSs and their parents.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>Semi-structured interviews were conducted with 19 parents of Japanese CCSs aged 16–25 years. The data were then qualitatively analyzed using the modified grounded theory approach.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Three “categories” and 20 “concepts” were generated. The connections among these categories and concepts revealed the parental involvement process regarding CCSs' independence while balancing their health management and social lives. The first phase in this process is to “support careful behaviors,” mainly during CCSs' treatment in the outpatient clinic or shortly after discharge. As CCSs recover after cancer treatment, parents “watch over, but feel conflicted,” with “conflicts between protecting their sons/daughters and giving them independence.” Then, parents reach a phase in which they “acknowledge and entrust,” which includes “acknowledgment of development and efforts” of their sons/daughters, and develop an “attitude to entrust medical checkups to their sons/daughters, along with their preparation.” The influencing factors of the three phases include “ongoing anxieties about the late effects of therapy and recurrence” and an “expectation for their sons/daughters to acquire abilities for living independently.”</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusions</h3>\\n \\n <p>These findings suggest that nurses need to accept parents' feelings and thoughts regarding conflicts with CCSs, recognition of CCSs' development, and values. These processes may help nurses and health-care professionals support parents from a comprehensive perspective.</p>\\n </section>\\n </div>\",\"PeriodicalId\":50265,\"journal\":{\"name\":\"Japan Journal of Nursing Science\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.7000,\"publicationDate\":\"2023-11-08\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Japan Journal of Nursing Science\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/jjns.12572\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Japan Journal of Nursing Science","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jjns.12572","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
The parental involvement process regarding childhood cancer survivors becoming independent: Focus on balancing health management and social lives from adolescence to adulthood
Aim
This study aimed to elucidate the parental involvement process regarding childhood cancer survivors' (CCSs') independence while balancing their health management and social lives from adolescence to adulthood to obtain suggestions for long-term support for CCSs and their parents.
Methods
Semi-structured interviews were conducted with 19 parents of Japanese CCSs aged 16–25 years. The data were then qualitatively analyzed using the modified grounded theory approach.
Results
Three “categories” and 20 “concepts” were generated. The connections among these categories and concepts revealed the parental involvement process regarding CCSs' independence while balancing their health management and social lives. The first phase in this process is to “support careful behaviors,” mainly during CCSs' treatment in the outpatient clinic or shortly after discharge. As CCSs recover after cancer treatment, parents “watch over, but feel conflicted,” with “conflicts between protecting their sons/daughters and giving them independence.” Then, parents reach a phase in which they “acknowledge and entrust,” which includes “acknowledgment of development and efforts” of their sons/daughters, and develop an “attitude to entrust medical checkups to their sons/daughters, along with their preparation.” The influencing factors of the three phases include “ongoing anxieties about the late effects of therapy and recurrence” and an “expectation for their sons/daughters to acquire abilities for living independently.”
Conclusions
These findings suggest that nurses need to accept parents' feelings and thoughts regarding conflicts with CCSs, recognition of CCSs' development, and values. These processes may help nurses and health-care professionals support parents from a comprehensive perspective.
期刊介绍:
The Japan Journal of Nursing Science is the official English language journal of the Japan Academy of Nursing Science. The purpose of the Journal is to provide a mechanism to share knowledge related to improving health care and promoting the development of nursing. The Journal seeks original manuscripts reporting scholarly work on the art and science of nursing. Original articles may be empirical and qualitative studies, review articles, methodological articles, brief reports, case studies and letters to the Editor. Please see Instructions for Authors for detailed authorship qualification requirement.