评估癌症补充、替代和综合医学网站信息的质量:一项横断面调查和分析

IF 1.9 4区 医学 Q3 INTEGRATIVE & COMPLEMENTARY MEDICINE European Journal of Integrative Medicine Pub Date : 2023-10-11 DOI:10.1016/j.eujim.2023.102309
Jeremy Y. Ng, Maheen Raja, Umair Tahir, Harmy Thakar, Sabrina L. Balkaran
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引用次数: 0

摘要

癌症患者经常使用补充、替代和综合药物(CAIM);在此之前,许多人在网上寻求有关这些疗法的信息。人们对这种基于网络的消费者健康信息的质量知之甚少。我们的研究旨在通过评估讨论癌症治疗和/或管理的网站上CAIM消费者健康信息的质量来解决这一研究匮乏的问题。方法于2023年1月4日,在四个英语国家(加拿大、美国、英国和澳大利亚)的谷歌中输入六个搜索词。如果每个搜索的前20个结果包含用于癌症治疗和/或管理的CAIM消费者健康信息,则对其进行评估并将其包括在内。符合条件的网站使用旨在评估信息质量的16项DISCERN工具进行评估。结果在480个已确定的网站中,393个是重复的,48个符合资格标准,并使用DISCERN工具进行了评估。所有网站的DISCERN总分平均值为48.28(SD=14.26),每个网站的整体质量平均值为3.11(SD=0.66)。发现了一些网站质量问题,包括信息来源缺乏透明度、治疗的不确定性、上述治疗的后果以及治疗对生活质量的影响。结论医疗保健提供者应意识到患者可能会使用这些网站获取CAIM信息。为了促进知情决策,鼓励医疗保健提供者询问患者对CAIM的使用和兴趣,并引导他们获得可信和值得信赖的资源。
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Assessing the quality of complementary, alternative, and integrative medicine website information for cancer: A cross-sectional survey and analysis

Introduction

Patients with cancer frequently utilize complementary, alternative, and integrative medicine (CAIM); prior to this, many seek information about these therapies online. Little is known about the quality of this web-based consumer health information. Our study aimed to address this paucity of research by evaluating the quality of CAIM consumer health information on websites discussing the treatment and/or management of cancer.

Methods

Six search terms were entered into Google across four English-speaking countries (Canada, United States, United Kingdom and Australia) on January 4, 2023. The first 20 results of each search were assessed and included if they contained CAIM consumer health information for the treatment and/or management of cancer. Eligible websites were assessed using the 16-item DISCERN instrument, designed to evaluate information quality.

Results

Of 480 identified websites, 393 were duplicates, and 48 fit the eligibility criteria and were assessed using the DISCERN instrument. Mean summed DISCERN scores across all websites was 48.28 (SD = 14.26), and mean scores of the overall quality of each website was 3.11 (SD = 0.66). Several website quality issues were identified, including a lack of transparency surrounding sources of information, areas of uncertainty regarding treatment, consequences of foregoing treatment, and treatment impacts on quality of life.

Conclusion

Healthcare providers should be aware that patients may use these websites for CAIM information. To facilitate informed decision-making, healthcare providers are encouraged to ask about patients’ usage and interest in CAIM and direct them to credible and trustworthy resources.

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来源期刊
European Journal of Integrative Medicine
European Journal of Integrative Medicine INTEGRATIVE & COMPLEMENTARY MEDICINE-
CiteScore
4.70
自引率
4.00%
发文量
102
审稿时长
33 days
期刊介绍: The European Journal of Integrative Medicine (EuJIM) considers manuscripts from a wide range of complementary and integrative health care disciplines, with a particular focus on whole systems approaches, public health, self management and traditional medical systems. The journal strives to connect conventional medicine and evidence based complementary medicine. We encourage submissions reporting research with relevance for integrative clinical practice and interprofessional education. EuJIM aims to be of interest to both conventional and integrative audiences, including healthcare practitioners, researchers, health care organisations, educationalists, and all those who seek objective and critical information on integrative medicine. To achieve this aim EuJIM provides an innovative international and interdisciplinary platform linking researchers and clinicians. The journal focuses primarily on original research articles including systematic reviews, randomized controlled trials, other clinical studies, qualitative, observational and epidemiological studies. In addition we welcome short reviews, opinion articles and contributions relating to health services and policy, health economics and psychology.
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