{"title":"审查2019冠状病毒病对土耳其罕见病患者的心理社会生活和社会支持来源的影响","authors":"Merve Deniz Pak Güre, M. Karataş, Veli Duyan","doi":"10.1080/02185385.2021.1935310","DOIUrl":null,"url":null,"abstract":"ABSTRACT The study aims to examine the effects of the COVID-19 on the psychosocial life and the sources of social support of people with rare diseases in Turkey. The research was conducted with 178 rare disease patients. The sociodemographic questionnaire, The Fear of COVID-19 scale, General Health Survey-12, and the Multidimensional Scale of Perceived Social Support were used. The Fear of COVID-19 Scale average score is 20.20 ± 6.11, General Health Survey-12 average score is 5.82 ± 1.77, and the Multidimensional Scale of Perceived Social Support average score is 52.84 ± 14.23. There is a positive correlation between ages and scores on The Fear of COVID-19 Scale (r = .221, p˂.001). There is a negative correlation between the participant’s scores on the Multidimensional Perceived Social Support Scale and the General Health Survey-12 (r = -,265, p˂.001). It is suggested to develop social service delivery systems to support people with rare diseases.]","PeriodicalId":1,"journal":{"name":"Accounts of Chemical Research","volume":null,"pages":null},"PeriodicalIF":16.4000,"publicationDate":"2021-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Examination of the effects of COVID-19 on the psychosocial life and the sources of social support of people with rare diseases in Turkey\",\"authors\":\"Merve Deniz Pak Güre, M. Karataş, Veli Duyan\",\"doi\":\"10.1080/02185385.2021.1935310\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"ABSTRACT The study aims to examine the effects of the COVID-19 on the psychosocial life and the sources of social support of people with rare diseases in Turkey. The research was conducted with 178 rare disease patients. The sociodemographic questionnaire, The Fear of COVID-19 scale, General Health Survey-12, and the Multidimensional Scale of Perceived Social Support were used. The Fear of COVID-19 Scale average score is 20.20 ± 6.11, General Health Survey-12 average score is 5.82 ± 1.77, and the Multidimensional Scale of Perceived Social Support average score is 52.84 ± 14.23. There is a positive correlation between ages and scores on The Fear of COVID-19 Scale (r = .221, p˂.001). There is a negative correlation between the participant’s scores on the Multidimensional Perceived Social Support Scale and the General Health Survey-12 (r = -,265, p˂.001). It is suggested to develop social service delivery systems to support people with rare diseases.]\",\"PeriodicalId\":1,\"journal\":{\"name\":\"Accounts of Chemical Research\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":16.4000,\"publicationDate\":\"2021-06-09\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Accounts of Chemical Research\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1080/02185385.2021.1935310\",\"RegionNum\":1,\"RegionCategory\":\"化学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"CHEMISTRY, MULTIDISCIPLINARY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Accounts of Chemical Research","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1080/02185385.2021.1935310","RegionNum":1,"RegionCategory":"化学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CHEMISTRY, MULTIDISCIPLINARY","Score":null,"Total":0}
Examination of the effects of COVID-19 on the psychosocial life and the sources of social support of people with rare diseases in Turkey
ABSTRACT The study aims to examine the effects of the COVID-19 on the psychosocial life and the sources of social support of people with rare diseases in Turkey. The research was conducted with 178 rare disease patients. The sociodemographic questionnaire, The Fear of COVID-19 scale, General Health Survey-12, and the Multidimensional Scale of Perceived Social Support were used. The Fear of COVID-19 Scale average score is 20.20 ± 6.11, General Health Survey-12 average score is 5.82 ± 1.77, and the Multidimensional Scale of Perceived Social Support average score is 52.84 ± 14.23. There is a positive correlation between ages and scores on The Fear of COVID-19 Scale (r = .221, p˂.001). There is a negative correlation between the participant’s scores on the Multidimensional Perceived Social Support Scale and the General Health Survey-12 (r = -,265, p˂.001). It is suggested to develop social service delivery systems to support people with rare diseases.]
期刊介绍：
Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance.
Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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