书评:姑息治疗中的社会心理问题

J. Barnhill
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The book is intended to be a useful guide to the care of the dying, and it succeeds. The huge number of listed citations underlines the reality that sophisticated healthcare must include not only blinking machines but also the latest within the realm of the psychosocial. I very much liked the book’s attention to the human being who is sick. For example, one chapter described that, while it is important to recognize cultural differences, the clinician should still explore the person’s individual issues rather than assume that the patient fits neatly into one’s cultural expectation. I was also struck by another chapter’s description of the many ways in which clinicians dodge intimacy. Through the use of, for example, medical jargon or selective attention to dry topics, we avoid the people who are sitting in front of us. I also enjoyed the emphasis on narrative as it applies to the terminally ill. It can be very healing for the patient to integrate his illness into a personal biography. The most pressing reason for the reading of this book is the fact that much psychiatric and psychological morbidity goes untreated in the terminally ill and that much of the treatment comes too late. Some of the delay relates to the complexity of diagnosis. Acute onset of irritability is, for example, common, and the clinician may find it difficult to differentiate adjustment disorders, major depression, delirium, pulmonary embolus, and the effects of a cytokine cascade. The book expertly delineates the efforts that have been made to account for the fact that many symptoms of affective illness overlap with illness behaviors. It also discusses the controversy over whether adjustment disorder is a less severe variant of depression. An alternative theory posits that depression refers to a symptom-based cluster, while adjustment disorder is more functionally based. The authors discuss the possibility that rigid premorbid thinking might reduce the patient’s ability to adapt to the reality of constricting opportunities. Compromised coping might amplify distress and lead to depression. This underlines the importance of not only diagnosing depression but also recognizing distress and maladaptive coping styles. Similarly, the authors point out that independent determinants of the desire for hastened death include depression and a persistently pessimistic cognitive style rather than an assessment of a poor prognosis.1 To uncover cognitive and coping styles does require effort, training, and curiosity on the part of the clinician. At the same time, the book does mention Chochinov et al.’s classic study demonstrating that if the patient says he is depressed, depression is highly likely.2 I was somewhat ambivalent about the number of references provided at the end of each chapter. 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Acute onset of irritability is, for example, common, and the clinician may find it difficult to differentiate adjustment disorders, major depression, delirium, pulmonary embolus, and the effects of a cytokine cascade. The book expertly delineates the efforts that have been made to account for the fact that many symptoms of affective illness overlap with illness behaviors. It also discusses the controversy over whether adjustment disorder is a less severe variant of depression. An alternative theory posits that depression refers to a symptom-based cluster, while adjustment disorder is more functionally based. The authors discuss the possibility that rigid premorbid thinking might reduce the patient’s ability to adapt to the reality of constricting opportunities. Compromised coping might amplify distress and lead to depression. This underlines the importance of not only diagnosing depression but also recognizing distress and maladaptive coping styles. 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引用次数: 0

摘要

机器人手术、干细胞研究和细胞因子增强免疫疗法的可能性潜伏在垂死病人的脑海中。患者通常是在大型医院中首次被诊断出来的,他们可能已经把复杂的医疗技术等同于闪烁的硬件。在这艘技术可能性的战舰旁边,坐着一艘社会心理不确定性的帆船。病人抑郁吗?我们如何与绝症患者交谈?我们怎样服侍属灵的需要?护理人员应该如何照顾自己?如何定义临终病人的希望?医学的复杂性是否可以重新定义为包括社会心理和精神的复杂性?《姑息治疗中的社会心理问题》由18位临床医生和研究人员撰写的12个章节组成,他们每个人都有成就并致力于姑息治疗的事业。这本书的目的是成为照顾临终者的有用指南,它成功了。列出的大量引用强调了一个现实,即复杂的医疗保健不仅必须包括闪烁的机器,还必须包括社会心理领域的最新成果。我非常喜欢这本书对病人的关注。例如,有一章描述说,虽然认识到文化差异很重要,但临床医生仍然应该探索病人的个人问题,而不是假设病人完全符合自己的文化期望。另一章对临床医生逃避亲密关系的多种方式的描述也让我印象深刻。例如,通过使用医学术语或选择性地关注枯燥的话题,我们避开了坐在我们前面的人。我也很喜欢书中对叙事的强调,因为它适用于绝症患者。对病人来说,把他的病融入个人传记是很有治疗作用的。阅读这本书最迫切的原因是,许多精神疾病和心理疾病在绝症患者中得不到治疗,而且很多治疗来得太晚了。一些延迟与诊断的复杂性有关。例如,易怒的急性发作是常见的,临床医生可能会发现很难区分调节障碍、重度抑郁、谵妄、肺栓塞和细胞因子级联的影响。这本书熟练地描述了已经做出的努力,以解释许多情感性疾病的症状与疾病行为重叠的事实。它还讨论了关于适应障碍是否是抑郁症的一种较轻的变体的争议。另一种理论认为,抑郁症指的是基于症状的群集,而适应障碍更基于功能。作者讨论了僵化的病前思维可能会降低患者适应紧缩机会现实的能力的可能性。妥协的应对方式可能会放大痛苦,导致抑郁。这不仅强调了诊断抑郁症的重要性,还强调了认识到痛苦和适应不良的应对方式的重要性。同样,作者指出,渴望加速死亡的独立决定因素包括抑郁和持续悲观的认知方式,而不是对预后不良的评估要发现认知和应对方式确实需要临床医生的努力、训练和好奇心。与此同时,这本书也提到了Chochinov等人的经典研究,该研究表明,如果病人说自己抑郁,那么他很有可能患上抑郁症我对每章末尾提供的参考文献的数量有些矛盾。证据对于该领域的进步至关重要,但是,如果使用不精确,它对我们走向复杂的努力没有帮助。例如,有时数据被断章取义以证实作者的偏见。有一章写得很好,声称医生的家长式做法会导致焦虑和抑郁。支持
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Book Review: Psychosocial Issues in Palliative Care
The possibilities of robotic surgery, stem cell research, and cytokine-boosting immunotherapy lurk in the minds of the dying patient. Often first diagnosed in massive hospitals, the patient may have come to equate medical sophistication with blinking hardware. Alongside this battleship of technological possibility sits a sailboat of psychosocial uncertainty. Is the patient depressed? How do we talk to the terminally ill? How do we minister to spiritual needs? How should caregivers care for themselves? How should hope be defined for the dying patient? Can medical sophistication be redefined to include psychosocial and spiritual complexity? Psychosocial Issues in Palliative Care consists of a dozen chapters written by 18 clinicians and researchers, each of whom is accomplished and dedicated to the cause of palliative care. The book is intended to be a useful guide to the care of the dying, and it succeeds. The huge number of listed citations underlines the reality that sophisticated healthcare must include not only blinking machines but also the latest within the realm of the psychosocial. I very much liked the book’s attention to the human being who is sick. For example, one chapter described that, while it is important to recognize cultural differences, the clinician should still explore the person’s individual issues rather than assume that the patient fits neatly into one’s cultural expectation. I was also struck by another chapter’s description of the many ways in which clinicians dodge intimacy. Through the use of, for example, medical jargon or selective attention to dry topics, we avoid the people who are sitting in front of us. I also enjoyed the emphasis on narrative as it applies to the terminally ill. It can be very healing for the patient to integrate his illness into a personal biography. The most pressing reason for the reading of this book is the fact that much psychiatric and psychological morbidity goes untreated in the terminally ill and that much of the treatment comes too late. Some of the delay relates to the complexity of diagnosis. Acute onset of irritability is, for example, common, and the clinician may find it difficult to differentiate adjustment disorders, major depression, delirium, pulmonary embolus, and the effects of a cytokine cascade. The book expertly delineates the efforts that have been made to account for the fact that many symptoms of affective illness overlap with illness behaviors. It also discusses the controversy over whether adjustment disorder is a less severe variant of depression. An alternative theory posits that depression refers to a symptom-based cluster, while adjustment disorder is more functionally based. The authors discuss the possibility that rigid premorbid thinking might reduce the patient’s ability to adapt to the reality of constricting opportunities. Compromised coping might amplify distress and lead to depression. This underlines the importance of not only diagnosing depression but also recognizing distress and maladaptive coping styles. Similarly, the authors point out that independent determinants of the desire for hastened death include depression and a persistently pessimistic cognitive style rather than an assessment of a poor prognosis.1 To uncover cognitive and coping styles does require effort, training, and curiosity on the part of the clinician. At the same time, the book does mention Chochinov et al.’s classic study demonstrating that if the patient says he is depressed, depression is highly likely.2 I was somewhat ambivalent about the number of references provided at the end of each chapter. Evidence is critical for the advancement of the field, but, when used imprecisely, it does not help in our effort towards sophistication. For example, data are sometimes taken out of context to substantiate the author’s bias. In one generally excellent chapter, it is claimed that the paternalistic approach of physicians leads to anxiety and depression. To back
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