心灵的碎片:通过艺术的镜头呈现帕金森病的生活经历和科学研究

N. Kuhlmann, Jérémie Robert, A. Thomas, S. Blain-Moraes
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引用次数: 0

摘要

在理解和治疗帕金森病方面,许多重要的研究进展从未离开过学术领域,因为交流障碍限制了与更广泛受众的接触和参与。为了加强学术研究人员与社区利益相关者之间的有意义的对话,“一心一意:帕金森病”将神经科学家、帕金森病患者和艺术家聚集在一起,共同创作一场基于科学研究和生活经验的知识翻译表演。这部电影的长片表演用马戏、舞蹈、音乐、诗歌和病人的证词在情感和智力上吸引了观众。我们提供了一个概览我们的参与过程和一场接一场的表演描述。
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Piece of Mind: Presenting the Lived Experience and Scientific Research of Parkinson’s Disease through an Artistic Lens
Many of the important research advances in understanding and treating Parkinson’s disease never leave the academic sphere, as communication barriers limit accessibility for and engagement with broader audiences. To increase meaningful dialogue between academic researchers and community stakeholders, Piece of Mind: Parkinson’s brought together neuroscientists, people with Parkinson’s disease and artists to co-create a knowledge translation performance based on scientific research and lived experience. The filmed, feature-length performance engages the viewer emotionally and intellectually using circus, dance, music, poetry and patient testimonials. We provide an overview of our participatory process and a scene-by-scene description of the performance.
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