新生血管性年龄相关性黄斑变性(nAMD)患者及其照护者的治疗负担和生活质量综述

R. Biswas, R. Roy, Nitin Maksane, Maulik Bhavsar, Ajitabha Sanyal
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引用次数: 1

摘要

在印度,新生血管性年龄相关性黄斑变性(nAMD)的发病率越来越高,其衰弱后果,如身体、心理和情绪压力,是一个值得关注的问题。由于nAMD导致的视力下降阻碍了患者执行日常任务的能力,导致依赖他人-通常导致焦虑和抑郁。虽然抗血管内皮生长因子(anti- vegf)等治疗方案很容易获得,但长期治疗的依从性往往受到损害。因此,对于卫生保健提供者来说,重要的是要意识到与nAMD相关的负担对患者和护理人员都是如此。印度拥有庞大的城市和农村人口基础,在保健可及性和可负担性方面面临各种挑战。此外,缺乏印度特有的研究来确定与nAMD相关的患者和护理人员负担。从印度人的角度更深入地了解疾病意识和治疗期望可能会进一步帮助临床医生为患者提供最佳管理。目前的综述提供了对nAMD患者及其护理者的生活质量(QoL)和治疗相关负担的见解。此外,它强调需要进行泛印度研究,以确定与nAMD相关的患者和护理人员负担,这可能有助于制定适合印度人口的治疗算法和定价政策,并使患者能够获得高质量的眼科护理。
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Treatment Burden and Quality of Life of Patients with Neovascular Age-Related Macular Degeneration (nAMD) and Their Caregivers—A Review
The growing incidence of neovascular age-related macular degeneration (nAMD) in India and its debilitating consequences, such as physical, psychological, and emotional stress, are a cause of significant concern. Failing eyesight due to nAMD hinders the ability of patients to perform daily tasks, leading to dependency on others – often resulting in anxiety and depression. Although treatment options such as anti-vascular endothelial growth factors (anti-VEGFs) are readily available, long-term treatment compliance is often compromised. Thus, it is important for health care providers to be aware of the burden associated with nAMD for both patients and caregivers. India, with its large urban and rural population base, faces varied challenges in health care accessibility and affordability. Further, there is a paucity of India-specific studies to ascertain patient and caregiver burden related to nAMD. A deeper understanding of disease awareness and treatment expectations from an Indian perspective may further help clinicians to provide optimum management to patients. The current review provides insights into the quality of life (QoL) and treatment-related burden for patients with nAMD and their caregivers. Further, it emphasizes the need of PAN-India studies to ascertain the patient and caregiver burden related to nAMD, which may assist in devising treatment algorithms and pricing policies suited to the Indian population and enable patients to receive quality eye care.
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