混合方法分析:传统药物、病耻感和麻风患者家庭支持在II级麻风残疾中的作用

I. Saputra, T. M. Rafsanjani, S. Usman
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摘要

II级麻风残疾患者在社会上的功能有限。在纳甘拉亚区,有41%的麻风病流行区,二级残疾率为5%。本研究的目的是证明传统药物、病耻感和麻风患者家庭支持与II级麻风残疾之间的关系。本研究采用混合方法和病例对照设计,84名被调查者中,42名病例被调查者(II级麻风残疾)和42名对照被调查者(0级麻风残疾)在一定的纳入和排除标准下通过连续抽样选择。数据收集采用深度访谈法。本研究采用双变量数据分析,采用卡方检验,多变量数据分析,采用logistic回归检验和Miles和Huberman模型。卡方分析结果显示,传统用药p值=0.014 (OR: 2.3;95% CI: 0.2-7.7),病耻感p=0.04 (OR:3.6;95% CI: 1.5-8.9),家庭支持p=0.192 (OR:2.0;95% ci: 0.7-5.8)。logistic回归分析结果显示,污名化是麻风II级致残的危险因素,p值=0.006,(OR=4.9;95% CI: 1.6-15.1),概率为99.96%。根据采访结果,麻风病人对社会不接受他们感到不舒服。当涉及到食物时,khanduri(盛宴)尤其如此,因为社会认为麻风病人会传播传染性的恶心疾病。纳甘拉雅区卫生办事处将鼓励社会接受麻风病患者,并提供有关麻风病传播过程的信息,以平息社区的恐惧,防止进一步的残疾。
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Mixed Methods Analysis: Traditional Medication,Stigma, and Leper’s Family Support Roles in Level II Leprosy Disability
People with a level II leprosy disability have limited functions in society. In Nagan Raya District, there is a 41% leprosy endemic area with a 5% level II disability rate. The goal of this research was to prove the relationships of traditional medication, stigma, and leper’s family support to level II leprosy disability. This research used mixedmethodsand a case-control design with 84 respondents42 case respondents (level II leprosy disability) and 42 control respondents (level 0 leprosy disability)chosen by consecutive sampling under some inclusion and exclusion criteria. Data collection used the in-depth interview method. This study used bivariate data analysis with the chi-square test and multivariate data analysis with the logistic regression test and the Miles and Huberman’s model. The results of the chi-square analysis indicated that traditional medication had p value=0.014 (OR: 2.3; 95% CI: 0.2–7.7), stigma p=0.04 (OR:3.6;95% CI: 1.5–8.9), and family’s support p=0.192 (OR:2.0; 95% CI: 0.7–5.8). The results of the logistic regression analysis showed that stigma was a risk factor for leprosy level II disability with p value=0.006, (OR=4.9; 95% CI: 1.6–15.1) and probability of 99.96%. Based on the interview results, lepers were feeling uncomfortable with the society’s not acceptingthem in a good way. This was especially the case with khanduri(feast) when it came down to food in that the society assumed lepers would transmit the infectious, disgusting disease. The Nagan Raya District Health Office is expected to encourage the societyto accept lepers and provide information regarding the process of leprosy transmission so as to appease the community’s fearand to prevent further disability.
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