{"title":"CARe 烧伤量表-成人版：确定患者报告结果量表 (PROM) 的响应性和最小重要差异 (MID) 值，以评估烧伤成人的生活质量。","authors":"Catrin Griffiths, Philippa Tollow, Danielle Cox, Paul White, Timothy Pickles, Diana Harcourt","doi":"10.3390/ebj3010019","DOIUrl":null,"url":null,"abstract":"<p><p>The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adult burn care and research. Participants were recruited by 11 UK Burn Services. They completed online or paper versions of the CARe Burn Scale -Adult Form and a set of appropriate comparison validated measures and anchor questions at baseline (T1, up to 4 weeks post-burn), 3 months (T2), and 6 months post-burn (T3). A total of 269 participants took part at baseline and 226 (84%) were retained at the 6-month follow-up. Spearman's correlation analysis and effect sizes based on Cohen's d thresholds were reported and MID values calculated. MID values were created for all subscales and ranged from 4-15. The CARe Burn Scale-Adult Form is responsive to change over time and can therefore be used to reliably inform the management of adults' burn injury treatment and recovery. It is freely available for clinical and research use.</p>","PeriodicalId":72961,"journal":{"name":"European burn journal","volume":"1 1","pages":"211-233"},"PeriodicalIF":1.0000,"publicationDate":"2022-03-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11575363/pdf/","citationCount":"0","resultStr":"{\"title\":\"The CARe Burn Scale-Adult Form: Identifying the Responsiveness and Minimal Important Difference (MID) Values of a Patient Reported Outcome Measure (PROM) to Assess Quality of Life for Adults with a Burn Injury.\",\"authors\":\"Catrin Griffiths, Philippa Tollow, Danielle Cox, Paul White, Timothy Pickles, Diana Harcourt\",\"doi\":\"10.3390/ebj3010019\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adult burn care and research. Participants were recruited by 11 UK Burn Services. They completed online or paper versions of the CARe Burn Scale -Adult Form and a set of appropriate comparison validated measures and anchor questions at baseline (T1, up to 4 weeks post-burn), 3 months (T2), and 6 months post-burn (T3). A total of 269 participants took part at baseline and 226 (84%) were retained at the 6-month follow-up. Spearman's correlation analysis and effect sizes based on Cohen's d thresholds were reported and MID values calculated. MID values were created for all subscales and ranged from 4-15. The CARe Burn Scale-Adult Form is responsive to change over time and can therefore be used to reliably inform the management of adults' burn injury treatment and recovery. It is freely available for clinical and research use.</p>\",\"PeriodicalId\":72961,\"journal\":{\"name\":\"European burn journal\",\"volume\":\"1 1\",\"pages\":\"211-233\"},\"PeriodicalIF\":1.0000,\"publicationDate\":\"2022-03-10\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11575363/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"European burn journal\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.3390/ebj3010019\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"CRITICAL CARE MEDICINE\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"European burn journal","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.3390/ebj3010019","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"CRITICAL CARE MEDICINE","Score":null,"Total":0}
引用次数: 0
摘要
CARe 烧伤量表是一套烧伤专用的 PROM，适用于受烧伤影响的成人、儿童、青少年和家长。本研究旨在确定成人表的响应性和最小重要差异 (MID) 值，以用于成人烧伤护理和研究。参与者由英国 11 家烧伤服务机构招募。他们分别在基线期（T1，烧伤后 4 周内）、3 个月期（T2）和 6 个月期（T3）完成了在线或纸质版 CARe 烧伤量表（成人版）以及一组适当的对比验证测量和锚定问题。共有 269 人参加了基线调查，其中 226 人（84%）在 6 个月的随访中保留了下来。报告了斯皮尔曼相关分析和基于 Cohen's d 临界值的效应大小，并计算了 MID 值。所有分量表的 MID 值均为 4-15 之间。CARe 烧伤量表-成人版对随时间推移而发生的变化反应灵敏，因此可用于为成人烧伤治疗和康复管理提供可靠的信息。该量表可免费供临床和研究使用。
The CARe Burn Scale-Adult Form: Identifying the Responsiveness and Minimal Important Difference (MID) Values of a Patient Reported Outcome Measure (PROM) to Assess Quality of Life for Adults with a Burn Injury.
The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adult burn care and research. Participants were recruited by 11 UK Burn Services. They completed online or paper versions of the CARe Burn Scale -Adult Form and a set of appropriate comparison validated measures and anchor questions at baseline (T1, up to 4 weeks post-burn), 3 months (T2), and 6 months post-burn (T3). A total of 269 participants took part at baseline and 226 (84%) were retained at the 6-month follow-up. Spearman's correlation analysis and effect sizes based on Cohen's d thresholds were reported and MID values calculated. MID values were created for all subscales and ranged from 4-15. The CARe Burn Scale-Adult Form is responsive to change over time and can therefore be used to reliably inform the management of adults' burn injury treatment and recovery. It is freely available for clinical and research use.
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