养育患有胎儿酒精谱系障碍的孩子的回报

Jason Brown, S. Rodger, Natalie George, David St. Arnault, Jennifer Sintzel
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引用次数: 10

摘要

有相当数量的研究与养育有残疾的孩子有关的挑战,很少关注积极的方面。该研究的目的是描述患有胎儿酒精谱系障碍(FASD)儿童的父母的回报。19名亲生父母、养父母或养父母被要求回答以下问题:“养育患有FASD的孩子有什么回报?”采用多维尺度和聚类分析对数据进行分析。结果是四组。家长们表示,他们看到孩子们在各个领域的努力、成长和成就是令人鼓舞的。家长们也表示,他们感到自己受到了孩子们的赏识。结果表明,有酒精相关残疾的孩子的有益育儿经历是多种多样的,与文献相比,在很大程度上是一致的。这些结果为现有的关于养育发育障碍儿童的回报的文献提供了可信度,特别是FASD。
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Rewards of Parenting a Child with a Fetal Alcohol Spectrum Disorder
There is a considerable amount of research on the challenges associated with parenting children who have dis- abilities, and little that focuses on positive aspects. The purpose of the study was to describe the rewards of parents of children with a fetal alcohol spectrum disorder (FASD). Nineteen birth, foster or adoptive parents were asked to answer the following question: "What are the rewards of parenting a child with a FASD?" The data were analyzed using multidi- mensional scaling and cluster analysis. Four clusters resulted. Parents indicated that they saw the children's effort, growth, and accomplishment in a variety of domains as encouraging. Parents also reported feeling appreciated by the children. Re- sults suggest that rewarding parenting experiences with children who have alcohol-related disabilities are multiple, diverse and, when compared to the literature, largely consistent. The results lend credibility to the existing literature on the re- wards of parenting children with developmental disabilities, and FASD in particular.
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