针对脆弱问题的强有力解决方案

Magdalena Annersten Gershater, Angus Forbes
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引用次数: 0

摘要

这些驱动因素在脆弱性的背景下尤为重要。我们已经看到,最脆弱的患者、年老体弱的患者和那些有多种合并症的患者最容易受到普遍追求积极治疗目标的影响。弱势群体需要更加敏感的管理,需要平衡不同的需求和风险。我们经常在那些挣扎着适应糖尿病生活的患者身上发现弱点——那些可能没有很好地参与糖尿病护理的患者。在本期杂志中,我们有一些解决这些问题的创新范例。在Shepherd的报告中,我们听到了年轻人成熟型糖尿病(MODY)患者的重要问题,以及糖尿病护士在识别这些患者并确保适当护理方面可以发挥的作用。这些患者很容易受到伤害,因为他们可能会接受不适当的治疗,这可能对他们的健康有害。该报告包含了识别这些患者的方法和个性化治疗方法,这些方法将有助于确保更好的护理结果。糖尿病患者的另一个重要的弱势群体是生命末期的患者。詹姆斯的报告强调了对这些患者的护理管理需要一种敏感的、个性化的方法。在生命的尽头,挑战是促进舒适和生活质量。该报告为糖尿病护士提供了一个框架,帮助他们在临终关怀的不同阶段考虑患者、亲属和护理人员在这一困难和脆弱时期的需求。再一次,我们看到个性化是重要的,糖尿病护士应该在最大限度地提高这些患者的生活质量和减轻症状方面发挥带头作用。婴儿显然是脆弱的。要管理像糖尿病这样复杂的健康问题,使用像胰岛素泵这样要求很高的技术,对家庭来说是非常困难的。这些家庭可能会感到脆弱;福斯纳等人的报告捕捉到了这一脆弱性,该报告强调了糖尿病父母和婴儿对泵治疗的需求。我们也有Halkoaho等人的一份报告,该报告确定了2型糖尿病患者在生活中面临的困难。该报告说明,患者重视具有强烈关系护理的支持性方法,当卫生专业人员以药物和生活方式改变为重点推动他们自己的议程时,这可能会疏远他们。再一次,这是脆弱:这是脆弱的病人对他们的糖尿病的兴趣和相信他们可以做一些事情来改变他们自己的健康。脆弱性也是一个重要的全球性问题。我们收录了去年年底在墨尔本举行的世界糖尿病大会的一份报告。正如你将从吉尔·胡德的叙述中读到的,在糖尿病方面有许多重大的国际问题和发展。在全球层面,脆弱性表现为糖尿病对某些人群造成的不成比例的影响。这些人群往往生活在一些最贫穷的国家和社区,用于应对糖尿病对其公民健康和经济影响的资源有限。因此,我们所有人都有责任识别在糖尿病生活中可能具有不同程度脆弱性的患者和护理人员。同样重要的是,我们要采取行动,制定系统和战略,确保所有弱势患者得到良好护理。因此,当我们走向个性化的护理模式时,糖尿病护士需要开发敏感和智能的护理方法。我们希望本期杂志中所载的例子将为您提供一些有用的参考点和最重要的灵感。
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Strong solutions for vulnerable issues

These drivers are particularly important in the context of vulnerability. We have seen that it was the most vulnerable patients, the older frail patients and those with multiple comorbidities that were most affected by the universal pursuit of aggressive treatment targets. It is the vulnerable that require much more sensitive management with the need to balance different needs and risks. And we often find vulnerability in the patients who struggle to adapt to life with diabetes – those that may not engage well with diabetes care. In this edition of the journal we have some exemplar innovations that address many of these issues.

In the report from Shepherd, we hear about the important issue of patients with maturity onset diabetes of the young (MODY) and the role diabetes nurses can play in identifying these patients and ensuring appropriate care. These patients are vulnerable as they can receive inappropriate treatment that can be detrimental to their well-being. The report contains methods for identifying these patients and individually tailored treatments that will help ensure better care outcomes.

Another important vulnerable group of patients with diabetes are patients at the end of life. James's report highlights the need for a sensitive and, again, individualised approach to care management for these patients. At the end of life the challenge is to promote comfort and quality of life. The report gives diabetes nurses a framework to help them consider the needs of patients, relatives and carers through this difficult and vulnerable period during the different stages in end of life care. Again, we see that individualisation is important and that diabetes nurses should be taking a lead in maximising the quality of life in these patients and in symptom alleviation.

Young infants are by definition vulnerable. Having to manage a complex health problem like diabetes with a demanding technology such as an insulin pump can be very difficult for families. These families can feel vulnerable; this vulnerability is captured in the report from Forsner et al., which highlights the needs of parents and infants with diabetes in relation to pump therapy.

We also have a report from Halkoaho et al. identifying the difficulties patients face in living with type 2 diabetes. The report illustrates that patients value a supportive approach with strong relational care and that, when health professionals promote their own agenda focusing on medications and lifestyle change, this can be alienating. This is, again, vulnerability: it is the vulnerability of the patient's interest in their diabetes and the belief that they can do things that will make a difference to their own health.

Vulnerability is also an important global issue. We include in this edition a report from the recent World Diabetes Congress in Melbourne at the end of last year. As you will read from Gill Hood's account, there are many significant international issues and developments in diabetes. At the global level, vulnerability is expressed in the disproportionate impact of diabetes on some populations. These populations are often in some of the poorest countries and communities, with limited resources to respond to effects of diabetes on the health of their citizens and on their economy.

Therefore, it is incumbent on us all to identify patients and carers who may have different levels of vulnerability in the context of a life with diabetes. It is equally important that we act to develop systems and strategies to ensure good care for all vulnerable patients. So, as we move toward individualised models of care, diabetes nurses need to develop sensitive and intelligent approaches to care. We hope the examples contained in this issue of the journal will provide you with some useful points of reference and that all-important inspiration.

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