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引用次数: 2

摘要

我的研究领域是病耻感、技术和HCI研究方法的交叉点。就艾滋病毒而言,技术设计的重点是药物依从性和治疗管理,而不是探索艾滋病毒感染者如何通过使用技术更直接地应对与艾滋病毒相关的耻辱。此外,艾滋病毒的HCI研究依赖于面对面的研究。因此,我的论文工作主要集中在两个方面:(1)通过互联网进行远程HCI研究;(2)能够帮助个人应对艾滋病相关污名的技术设计。我之前的工作已经探索了第一个方面。目前,我正在计划一项涉及远程异步和同步协同设计研讨会的研究。我的论文工作有几个贡献。首先,它提供了见解、经验教训和最佳做法,以远程开展受歧视人群的HCI研究。其次,它探讨了使用当前技术来应对公众与艾滋病毒相关的耻辱;第三,它探索了技术的推测设计,可以帮助人们更直接地应对与艾滋病毒相关的耻辱。
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Conducting HCI Research on Stigma
My research area lies at the intersection of stigma, technology, and HCI research methods. In the case of HIV, design of technology has focused on medication adherence and treatment management and less on exploring how people living with HIV can cope with HIV-related stigma more directly via the use of technology. Additionally, HCI research on HIV has relied on face-to-face studies. My dissertation work thus focuses on two aspects: (1) HCI research conducted remotely via the Internet; and (2) the design of technology that could help individuals cope with HIV-related stigma. My prior work has already explored the first aspect. At the moment, I am planning a study that would involve remote asynchronous and synchronous co-design workshops. There are several contributions of my dissertation work. First, it provides insights, lessons, and best practices to conduct HCI research with a stigmatized population remotely. Second, it explores the use of current technology to cope with public HIV-related stigma; and, third, it explores the speculative design of technology that could help people cope with HIV-related stigma more directly.
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