信心学院-神经病学患者的在线教育工具

H. Angus-Leppan, Alice Caulfield, Melika M Moghim, J. Nightingale, Robert F. Sloan, Tom Stables, Michael Oates, B. Porter, A. Schrag
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摘要

COVID-19及其后果凸显了患者自我护理以及参与监测和改善其健康的重要性。指导这一点的资源是必不可少的。我们的目标是创建一个基于网络的患者教育工具,以促进癫痫、多发性硬化症和帕金森病患者的患者教育和赋权,并免费提供给患者、护理人员和临床医生。这个项目是在社区和二级神经病学服务中心进行的。患者及其护理人员作为临床医生和数字工程师的平等伙伴,参与了该工具的设计、审查和修改。开发了一个基于网络的设计模板,其中包含图形和链接,使患者能够创建个性化的计划。参与者包括患者、护理人员、临床医生(神经病学顾问和专科护士)、神经病学慈善机构、伦敦神经科学临床网络、英国国家医疗服务体系和Shift。Ms(一个服务设计团队,在为患有神经系统疾病的个人创建数字服务方面有经验)。转变。Ms进行了深入的采访。临床医生使用了来自个人和PubMed数据库的证据。转变。Ms分析和协调了这些回应,并设计了试点工具。信心学院提供了一种与多发性硬化症、癫痫和帕金森病有关的患者教育的交付模式。需要对摄取情况进行后续评估。这种基于网络的可访问的患者授权工具对重复使用没有限制,维护成本低,并且在扩大用户数量方面没有额外成本。它非常适合在COVID-19大流行期间和之后使用。
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Confidence College – an online education tool for neurology patients
COVID-19 and its aftermath highlight the importance of patient self-care and involvement in monitoring and improving their health. Resources to guide this are essential. Our objective was to create a web-based patient education tool, to facilitate patient education and empowerment for people with epilepsy, multiple sclerosis and Parkinson’s disease, available without cost to patients, carers and clinicians. This project was conducted within community and secondary neurology services. Patients and their carers were involved in designing, reviewing and revising the tool, as equal partners with clinicians and digital engineers. A web-based design template was developed with graphics and links to enable patients to create personalised plans. Participants are patients, carers, clinicians (neurology consultants and specialist nurses), neurological charities, the London Neuroscience Clinical Network, NHS England and Shift.ms (a service design team with experience in creating digital services for individuals living with neurological conditions). Shift.ms conducted in-depth interviews. Clinicians used evidence from personal and PubMed databases. Shift.ms analysed and co-ordinated the responses, and designed the pilot tool. Confidence College provides a delivery model for patient education relating to multiple sclerosis, epilepsy and Parkinson’s disease. It requires follow-up evaluation regarding uptake. This web-based accessible patient empowerment tool has no limit on recurrent use, low maintenance costs and no additional costs in up-scaling the number of users. It is ideally suited for use during and after the COVID-19 pandemic.
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审稿时长
8 weeks
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