烧伤疤痕康复中的电子患者报告结果测量:实施和评估指南》。

IF 1 Q4 CRITICAL CARE MEDICINE European burn journal Pub Date : 2022-04-05 DOI:10.3390/ebj3020025
Jill Meirte, Zephanie Tyack
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引用次数: 0

摘要

在烧伤疤痕康复领域,作为以患者和家属为中心的护理的一部分,电子患者报告结果测量(ePROM)正越来越多地应用于研究和临床环境中。这些测量方法可以确定患者的需求,并监测成人和儿童的治疗进展。向治疗瘢痕和社会心理问题患者的临床医生反馈来自电子病理检验的信息可能会带来治疗上的益处。然而,对烧伤瘢痕患者常规临床护理中使用的 ePROM 的有效性进行测试尚处于起步阶段,最大的挑战之一仍然是在现实世界的临床环境中实施 ePROM。本文旨在为烧伤疤痕康复领域的临床医生和研究人员提供一份指南,以帮助他们在临床环境中实施 ePROM。该指南概述了实施 ePROM 的策略、流程和注意事项,并提供了相应的资源。其中还介绍了比利时和澳大利亚烧伤疤痕诊所实施 ePROM 的两个真实案例研究。此外,根据研究证据和作者的经验教训,还为电子病历管理系统的实施提供了十项建议。所提供的信息将为在研究和实践中使用和测试这些 ePROM 铺平道路。
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Electronic Patient-Reported Outcome Measures in Burn Scar Rehabilitation: A Guide to Implementation and Evaluation.

In burn scar rehabilitation, electronic patient-reported outcome measures (ePROMs) are increasingly being used in research and clinical settings as part of patient- and family-centred care. These measures can identify patients' needs and monitor the therapeutic progress of both adults and children. The feedback of information from ePROMs to clinicians treating patients with scarring and psychosocial issues may have therapeutic benefits. However, testing the effectiveness of ePROMs used in the routine clinical care of patients with burn scarring is in its infancy, and one of the greatest challenges remains the implementation of ePROMs in real-world clinical settings. The aim of this paper is to provide a guide for clinicians and researchers involved in burn scar rehabilitation to assist in implementing ePROMs in clinical settings. The guide outlines strategies, processes, and considerations for ePROM implementation and the accompanying resources. Two real-world case studies of ePROM implementation are presented in burn scar clinics in Belgium and Australia. Additionally, ten recommendations for the implementation of ePROMs are provided based on research evidence and the lessons learned by the authors. The information provided should pave the way forward for using and testing these ePROMs in research and practice.

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