进行性共济失调的多学科管理

R. Kimber, Genny Hart, E. Ladyman, J. Richmond
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引用次数: 0

摘要

国家神经病学和神经外科医院(NHNN)为进行性共济失调患者设立了一个专家中心。来自英国各地的患者参加鉴别诊断,专家意见,专家评估和治疗方案的探索。本文讨论了多学科团队在症状多样且临床有效治疗证据有限的情况下的治疗和管理考虑。它强调了注重症状管理和优化参与的量身定制治疗的重要性。报告还讨论了在COVID-19大流行期间使患者能够继续获得治疗的服务举措。这些举措被证明是非常成功的,因此今天继续运行。
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Multidisciplinary Management of Progressive Ataxia
The National Hospital for Neurology and Neurosurgery (NHNN) hosts a specialist centre for people living with Progressive Ataxias. Patients attend from across the UK for differential diagnosis, specialist opinion, expert assessment and exploration of treatment options. This article discusses the treatment and management considerations of the multi-disciplinary team in the context of a condition with a huge variety of symptoms and limited evidence base for clinically effective treatment. It highlights the importance of tailored treatment focused on symptom management and optimising participation. It also discusses service initiatives that enabled patients continued access to treatment during the COVID-19 pandemic. These initiatives were proven to be very successful and therefore continue to run today.
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发文量
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审稿时长
8 weeks
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