创建一个消费者驱动的全球实践社区,以支持痴呆症患者环境设计方面的行动:辅助技术的挑战与机遇。

IF 1.1 4区 医学 Q4 CLINICAL NEUROLOGY Brain Impairment Pub Date : 2023-09-01 Epub Date: 2023-02-20 DOI:10.1017/BrImp.2023.4
Emily Ong, Dennis Frost, Saskia Kuliga, Natasha Layton, Jacki Liddle
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引用次数: 0

摘要

环境以及作为环境一部分的辅助技术,可以在支持痴呆症患者的参与和福祉方面发挥重要作用。如果不加以考虑,环境可能会让人难以承受并丧失能力。包括环境考虑因素和辅助技术在内的残障方法往往不是为痴呆症患者提供的常规方法。痴呆症倡导者对此表示担忧,并致力于在这一领域做出改变。国际痴呆症联盟的环境设计特殊兴趣小组(ED-SiG)是作为一个以消费者为导向的国际实践社区而发展起来的,它汇集了具有不同相关专业知识的人员,包括生活经验(痴呆症患者、护理伙伴)、建筑与设计、职业治疗、康复和护理服务。这篇实践观点文章概述了痴呆症、在实践中与痴呆症患者合作实践的必要性,以及对辅助技术、环境设计和全球背景的考虑。这篇思考文章深入分析了这一国际实践社区,介绍了具有痴呆症生活经验的成员的个人思考,以及从成员的角度考虑环境设计和辅助技术的益处和机遇。这项工作展示并倡导了以痴呆症患者的观点和专业知识为中心的合作。
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Creating a consumer-driven global community of practice to support action within environmental design with people living with dementia: assistive technology challenges and opportunities.

The environment, and assistive technologies as part of this, can play an important role in supporting the participation and wellbeing of people living with dementia. If not considered, environments can be overwhelming and disempowering. Disability approaches including environmental considerations and assistive technology were often not offered routinely with people living with dementia. Concerned by this, dementia advocates aimed to create change in this area. The Environmental Design-Special Interest Group (ED-SiG) of Dementia Alliance International was developed as an international consumer-driven community of practice bringing together people with different relevant expertise including living experience (people living with dementia, care partners), architecture and design, occupational therapy, rehabilitation and care provision. This practice opinion piece provides an overview of dementia, the need for collaborative practices within practice with people living with dementia, and the considerations of assistive technology, environmental design and the global context. The reflection provides insights into this international community of practice, with personal reflections of members with living experience of dementia, and benefits and opportunities in considering environmental design and assistive technology from the perspectives of members. This work demonstrates and advocates collaborations that centre the perspectives and expertise of people living with dementia.

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来源期刊
Brain Impairment
Brain Impairment CLINICAL NEUROLOGY-NEUROSCIENCES
CiteScore
1.10
自引率
0.00%
发文量
30
审稿时长
>12 weeks
期刊介绍: The journal addresses topics related to the aetiology, epidemiology, treatment and outcomes of brain impairment with a particular focus on the implications for functional status, participation, rehabilitation and quality of life. Disciplines reflect a broad multidisciplinary scope and include neuroscience, neurology, neuropsychology, psychiatry, clinical psychology, occupational therapy, physiotherapy, speech pathology, social work, and nursing. Submissions are welcome across the full range of conditions that affect brain function (stroke, tumour, progressive neurological illnesses, dementia, traumatic brain injury, epilepsy, etc.) throughout the lifespan.
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