没有上帝的死亡:临终关怀的非宗教观点

Helen Dempsey-Henofer
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摘要

在指导临终关怀的文献中,非宗教人士的代表性不足。此外,很多关于非宗教患者的文章都是从宗教的角度来写的。为了解决这一缺陷,作者通过使用定量问卷和定性反馈对在线社交媒体群体参与者进行了描述性研究(N=263)。参与者来自非宗教人士的封闭社交媒体群。调查问题和回答提供了对非宗教人士关于临终医疗保健的相互关联的看法和经验的见解。参与者回答的问题评估了个人世界观描述、对临终关怀服务的开放程度、对牧师服务的感受、对死亡恐惧的期望、对宗教短语的感受、与他们的非宗教信仰相关的边缘化经历,以及对医疗保健提供者为非宗教人士提供护理的能力的看法。虽然不全面,调查结果表明共同的经验和观点,这可以在形式上的临终关怀从业者提供给这一人群。通过定性反馈,调查参与者分享了他们在医疗保健环境中的经验,并表达了希望医疗保健专业人员更多地了解非宗教人士的需求。参与者的定量反应和定性反馈都被用来告知实践的含义和建议,以照顾整个非宗教人士。
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Death without God: Nonreligious Perspectives on End-of-Life Care
Nonreligious people are underrepresented in the literature guiding end-of-life care. Moreover, much of what is written about nonreligious patients is written from a religious perspective. To address this deficit, the author conducted descriptive research by surveying online social media group participants using a quantitative questionnaire and qualitative feedback (N=263). Participants responded from closed social media groups for nonreligious people. Survey questions and responses offer insight into a nonreligious end-of-life dyad on the interrelated perceptions and experiences of nonreligious people regarding end-of-life healthcare. Participants responded to questions that assessed individual worldview description, openness to hospice services, feelings regarding chaplain services, expectations regarding fear of death, feelings on religious phrases, experiences of marginalization associated with their nonreligious affiliation, and perspectives regarding healthcare providers’ competency providing care for nonreligious people. Though not comprehensive, the survey results indicate common experiences and perspectives, which can in- form end-of-life practitioners providing care to this population. Through qualitative feedback, survey participants shared their experiences in healthcare settings and expressed a desire for healthcare professionals to be more aware of the needs of nonreligious people. Both the quantitative responses and qualitative feedback of participants is used to inform practice implications and recommendations made for caring for the whole nonreligious person.
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